Appendix B
Statement of Task
A planning committee of the National Academies of Sciences, Engineering, and Medicine will plan a public workshop that will explore the challenges and opportunities related to building an optimal integrated care system for people with intellectual and developmental disabilities (IDD) (e.g., individuals with autism spectrum disorder). The workshop will feature invited presentations and discussions that will explore questions related to models of care, workforce, and financing and payment for care such as the following:
Models of Care
- What are illustrative examples of care models that deliver holistic, tailored (developmentally appropriate and patient-centered), and coordinated care?
- What factors limit the sustainability and/or adoption of these care models?
Workforce Issues
- What is known about the workforce that serves people with IDD?
- What are the facilitators and barriers to improving the competency and capacity of all clinicians to care for people with IDD, particularly for minority and poor populations?
Financing of and Payment for Care
- What key data/analytic gaps do payers and purchasers need addressed to design effective financing and payment approaches for IDD care?
- What policy or programmatic changes would be required to ensure appropriate levels of financing for IDD health care services, including support for clinical providers to coordinate with peers in other service domains?
The planning committee will plan and organize the workshop, identify speakers and discussants, and moderate discussions. A proceedings of the presentations and discussion at the workshop will be prepared by a designated rapporteur in accordance with institutional guidelines.
