Welcome to the Workshop

Peggy Maguire, J.D.

President and Board Chair, Cambia Health Foundation

Chair, Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute; Chief, Division of Palliative Medicine, Department of Medicine, Brigham and Women’s Hospital; Co-Director, Harvard Medical School Center for Palliative Care; and Professor of Medicine, Harvard Medical School

Grace Campbell, Ph.D., M.S.W., RN

Assistant Professor, Duquesne University School of Nursing; Director of Quality and System Integration, Family CARE Center Gynecologic Oncology Program, Hillman Cancer Center at UPMC Magee

Clinical Professor of Medicine, Perelman School of Medicine; Executive Medical Director, Ann B. Barshinger Cancer Institute, Penn Medicine, Lancaster General Health

Moderator:

Julie Bynum, M.D., M.P.H.

Margaret Terpenning Professor of Medicine, Division of Geriatric Medicine, University of Michigan

Greg Link, MA

Director, Office of Supportive and Caregiving Services, Administration for Community Living, U.S. Department of Health and Human Services

Sheria Robinson-Lane, Ph.D., M.S.N., M.H.A., RN

Assistant Professor, University of Michigan School of Nursing

Chief Medical Officer, Indian Health Service (participating remotely)

Co-Moderators:

Jennifer Moore Ballentine, M.A.

Executive Director, CSU Shiley Haynes Institute for Palliative Care

Executive VP, Healthcare Quality and Value, National Patient Advocate Foundation

Cathy J. Bradley, Ph.D.

Professor and Associate Dean for Research, Colorado School of Public Health, University of Colorado at Denver; Deputy Director, University of Colorado Comprehensive Cancer Center

Co-Founder and CEO, ARCHANGELS

Director, Bereavement Clinic, Associate Attending Psychologist, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center

Family Caregiver, Pediatric Palliative Care National Task Force Member, Minnesota Department of Health’s Palliative Care Advisory Council

Co-Moderators:

Randy Jones, Ph.D., RN, FAAN

Professor and Associate Dean, Partner Development and Engagement, University of Virginia School of Nursing; Assistant Director of Outreach, Recruitment, and Engagement, University of Virginia Comprehensive Cancer Center

Assistant Director, Alameda County Care Alliance

Fayron Epps, Ph.D., RN, FAAN

Assistant Professor, NHCGNE Distinguished Educator in Gerontological Nursing, Nell Hodgson Woodruff School of Nursing, Emory University; Founder, Alter

Family Caregiver and Advocate for Frontotemporal Dementia care

Associate Attending Psychologist; Director, Caregivers Clinic, Department of Psychiatry and Behavioral Sciences, Memorial Sloan Kettering Cancer Center

Family Caregiver

Nursing student, NYU School of Nursing (participating remotely)

Chief Medical Officer, Indian Health Service (participating remotely)

Family Caregiver

Associate Dean for Research, Doctor of Philosophy Program Director, Western Health Advantage Endowed Professor, and Professor, Founding Faculty Member, Family Caregiving Institute, Betty Irene Moore School of Nursing, University of California at Davis; Lead Evaluator, Alameda County Care Alliance

Family Caregiver and Care Navigator, Alameda County Care Alliance

Professor of Nursing and Medicine; Co-Director, National Rehabilitation Research & Training Center on Family Support, University of Pittsburgh, and Director, GynOnc Family CARE Center, Magee-Womens-Hospital of UPMC

Family Caregiver

Co-Moderators:

Sara Damiano, LCSW, ACHP-SW

National Director of Palliative Care, Ascension

Memorial Sloan Kettering Cancer Center

Jason Karlawish, M.D.

Senior Fellow, Leonard Davis Institute of Health Economics; Professor of Medicine, Perelman School of Medicine; Co-Director, Penn Memory Center, University of Pennsylvania

Research Career Scientist, Center of Innovation to Accelerate Discovery and Practice Transformation, Durham Veterans Affairs Health Care System; Professor, Department of Population Health Science, Duke University School of Medicine and Duke-Margolis Center for Health Policy

Professor of Medicine, Section Chief, Geriatric Medicine, Yale University School of Medicine

Associate Professor of Medicine, Harvard Medical School; Director, OpenNotes, Beth Israel Deaconess Medical Center

Co-Moderators:

Pamela S. Hinds, Ph.D., RN, FAAN

Executive Director, Department of Nursing Science; Professional Practice & Quality Research Integrity Officer, Children’s National Hospital; Professor of Pediatrics, School of Medicine and Health Sciences, George Washington University

Professor and Associate Dean for Research, Colorado School of Public Health, University of Colorado at Denver; Deputy Director, University of Colorado Comprehensive Cancer Center

Rebekah S. M. Angove, Ph.D.

Vice President, Patient Experience and Program Evaluation; Director, Patient Insight Institute, Patient Advocate Foundation

Eugene and Mildred Lipitz Professor, Director, Roger C. Lipitz Center for Integrated Health Care, Department of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health

Associate Professor, Department of Health Policy and Management, UNC Gillings School of Global Public Health; Member of the Lineberger Comprehensive Cancer Center Prevention and Control Program

Assistant Professor, Department of Systems, Populations, and Leadership, University of Michigan School of Nursing

Co-Moderators:

Amy Melnick, M.P.A.

Executive Director, National Coalition for Hospice and Palliative Care

Vice President, Programs, The John A. Hartford Foundation

Susan Reinhard, RN, Ph.D., FAAN

Senior Vice President and Director, AARP Public Policy Institute & Chief Strategist, Center to Champion Nursing in America and Family Caregiving Initiatives

Clinical Policy Analyst, Clinical Innovation, America’s Health Insurance Plans

Vice President, Policy & Advocacy, National Alliance for Caregiving

Policy Associate, Behavioral Health, Aging, and Disability, National Academy for State Health Policy

Grace Campbell and Randall Oyer

Planning Committee Co-Chairs

Abena Apau Buckley, M.B.A.

Family Caregiver, Farm Production and Conservation, US Department of Agriculture

Family Caregiver; Pediatric Palliative Care National Task Force

Member; Minnesota Department of Health’s Palliative Care Advisory Council