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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Developing Health Literacy Skills
in Children and Youth

PROCEEDINGS OF A WORKSHOP

Alexis Wojtowicz, Rapporteur

Roundtable on Health Literacy

Board on Population Health and Public Health Practice

Health and Medicine Division

images

THE NATIONAL ACADEMIES PRESS
Washington, DC
www.nap.edu

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

THE NATIONAL ACADEMIES PRESS 500 Fifth Street, NW Washington, DC 20001

This activity was supported by contracts between the National Academy of Sciences and AbbVie Inc.; California Dental Association; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Media; Health Literacy Partners; Health Resources and Services Administration (HHSH25034011T); Merck Sharp & Dohme Corp.; National Library of Medicine; Northwell Health; Office of Disease Prevention and Health Promotion (HHSP23337043); Pfizer Inc.; and UnitedHealth Group. Any opinions, findings, conclusions, or recommendations expressed in this publication do not necessarily reflect the views of any organization or agency that provided support for the project.

International Standard Book Number-13: 978-0-309-68132-2
International Standard Book Number-10: 0-309-68132-4
Digital Object Identifier: https://doi.org/10.17226/25888

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Suggested citation: National Academies of Sciences, Engineering, and Medicine. 2020. Developing health literacy skills in children and youth: Proceedings of a workshop. Washington, DC: The National Academies Press. https://doi.org/10.17226/25888.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

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The National Academy of Sciences was established in 1863 by an Act of Congress, signed by President Lincoln, as a private, nongovernmental institution to advise the nation on issues related to science and technology. Members are elected by their peers for outstanding contributions to research. Dr. Marcia McNutt is president.

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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

PLANNING COMMITTEE ON DEVELOPING HEALTH LITERACY SKILLS IN CHILDREN AND YOUTH1

MARIN ALLEN, Deputy Associate Director for Communications and Public Liaison and Director of Public Information, Office of the Director, National Institutes of Health (retired)

MARINA ARVANITIS, Assistant Professor of Medicine, Feinberg School of Medicine, Northwestern University

ELAINE AULD, Chief Executive Officer, Society for Public Health Education

JENNIFER DILLAHA, Medical Director for Immunizations, Medical Advisor, Health Literacy and Communication, Arkansas Department of Health

JENNIFER MANGANELLO, Professor, University at Albany School of Public Health, State University of New York

TERRI ANN PARNELL, Principal and Founder, Health Literacy Partners

EARNESTINE WILLIS, Kellner Professor in Pediatrics and Director, Center for the Advancement of Underserved Children, Medical College of Wisconsin

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s planning committees are solely responsible for organizing the workshop, identifying topics, and choosing speakers. The responsibility for the published Proceedings of a Workshop rests with the workshop rapporteur and the institution.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

ROUNDTABLE ON HEALTH LITERACY1

LAWRENCE G. SMITH (Chair), Dean, Donald and Barbara Zucker School of Medicine at Hofstra/Northwell; Executive Vice President and Physician-in-Chief, Northwell Health

ANNLOUISE R. ASSAF, Patient Health Activation Expert and Global Medical Impact Senior Director, Pfizer Worldwide Medical and Safety; Adjunct Professor, Brown University School of Public Health

SUZANNE BAKKEN, Alumni Professor of Nursing and Professor of Biomedical Informatics, Columbia University

GEMIRALD DAUS, Public Health Analyst, Office of Health Equity, Health Resources and Services Administration

TERRY C. DAVIS, Professor of Medicine and Pediatrics, Louisiana State University Health Sciences Center—Shreveport

JENNIFER DILLAHA, Medical Director for Immunizations, Medical Advisor, Health Literacy and Communication, Arkansas Department of Health

JAMES DUHIG, Head, Risk Communication and Behavioral Systems, Office of Patient Safety, AbbVie Inc.

ALICIA FERNÁNDEZ, Professor of Medicine, Director, UCSF Latinx Center of Excellence, University of California, San Francisco, Zuckerberg San Francisco General Hospital

LISA FITZPATRICK, Senior Medical Director, DC Department of Health Care Finance, and Professorial Lecturer, The George Washington Milken Institute School of Public Health

LORI K. HALL, Director of Health Literacy, Global Medical Strategy and Operations, Eli Lilly and Company

LINDA HARRIS, Director, Division of Health Communication and eHealth Team, Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services

NICOLE HOLLAND, Assistant Professor and Director of Health Communication, Education, and Promotion, Tufts University School of Dental Medicine

ELLEN MARKMAN, Lewis M. Terman Professor of Psychology, Stanford University

MICHAEL McKEE, Associate Professor of Family Medicine, University of Michigan Medical School

LAURIE MYERS, Global Health Literacy Director, Merck Sharp & Dohme Corp.

___________________

1 The National Academies of Sciences, Engineering, and Medicine’s forums and roundtables do not issue, review, or approve individual documents. The responsibility for the published Proceedings of a Workshop rests with the workshop rapporteur and the institution.

Page viii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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CATINA O’LEARY, President and Chief Executive Officer, Health Literacy Media

MICHAEL PAASCHE-ORLOW, Professor of Medicine, Boston University School of Medicine

TERRI ANN PARNELL, Principal and Founder, Health Literacy Partners

LINDSEY A. ROBINSON, Diplomate, ABPD, California Dental Association

STEVEN RUSH, Director, Health Literacy Innovations, UnitedHealth Group

OLAYINKA SHIYANBOLA, Assistant Professor, Division of Social and Administrative Sciences, University of Wisconsin–Madison School of Pharmacy

VANESSA SIMONDS, Associate Professor, Community Health, Montana State University

CHRISTOPHER R. TRUDEAU, Associate Professor, University of Arkansas for Medical Sciences

EARNESTINE WILLIS, Kellner Professor in Pediatrics and Director, Center for the Advancement of Underserved Children, Medical College of Wisconsin

AMANDA J. WILSON, Head, Engagement and Training, National Library of Medicine

MICHAEL S. WOLF, Professor, Medicine and Learning Sciences, Associate Division Chief, Research Division of General Internal Medicine, Feinberg School of Medicine, Northwestern University

WINSTON F. WONG, Medical Director, Disparities Improvement and Quality Initiatives, Kaiser Permanente

Health and Medicine Division Staff

MELISSA G. FRENCH, Senior Program Officer (until January 2020)

ALEXIS WOJTOWICZ, Associate Program Officer

ANNA W. MARTIN, Administrative Assistant (until March 2020)

ROSE MARIE MARTINEZ, Senior Board Director, Board on Population Health and Public Health Practice

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

Reviewers

This Proceedings of a Workshop was reviewed in draft form by individuals chosen for their diverse perspectives and technical expertise. The purpose of this independent review is to provide candid and critical comments that will assist the National Academies of Sciences, Engineering, and Medicine in making each published proceedings as sound as possible and to ensure that it meets the institutional standards for quality, objectivity, evidence, and responsiveness to the charge. The review comments and draft manuscript remain confidential to protect the integrity of the process.

We thank the following individuals for their review of this proceedings:

DESIREE DE LA TORRE, Children’s National Hospital

BONNI C. HODGES, State University of New York at Cortland

ALICE HOROWITZ, University of Maryland

KAREN C. LEE, National Institutes of Health

Although the reviewers listed above provided many constructive comments and suggestions, they were not asked to endorse the content of the proceedings nor did they see the final draft before its release. The review of this proceedings was overseen by CLAIRE D. BRINDIS, University of California, San Francisco. She was responsible for making certain that an independent examination of this proceedings was carried out in accordance with standards of the National Academies and that all review comments were carefully considered. Responsibility for the final content rests entirely with the rapporteur and the National Academies.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
×

Acknowledgments

The sponsors of the Roundtable on Health Literacy made it possible to plan and conduct the workshop Developing Health Literacy Skills in Children and Youth, which this proceedings summarizes. Federal sponsors from the U.S. Department of Health and Human Services are the Health Resources and Services Administration; National Library of Medicine; and Office of Disease Prevention and Health Promotion. Nonfederal sponsorship was provided by AbbVie Inc.; California Dental Association; East Bay Community Foundation (Kaiser Permanente); Eli Lilly and Company; Health Literacy Media; Health Literacy Partners; Merck Sharpe & Dohme Corp.; Northwell Health; Pfizer Inc.; and UnitedHealth Group.

The workshop presentations were interesting and stimulated much discussion, and the Roundtable on Health Literacy would like to thank each of the speakers and moderators for their time and effort. Speakers and moderators were Marin Allen, Trina Anglin, Marina Arvanitis, Elaine Auld, Deena Chisolm, Sneha Dave, Steven Hoffman, Lloyd Kolbe, Hannah Lane, Jennifer Manganello, Laura Noonan, Gail Nunlee-Bland, Rory Parnell, Terri Ann Parnell, Vanessa Simonds, Lawrence Smith, Earnestine Willis, and H. Shonna Yin.

Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Acronyms and Abbreviations

ACA Patient Protection and Affordable Care Act
ACO accountable care organization
ADAPT Avoiding Diabetes thru Action Plan Targeting: T2D Prevention
AMHS August Martin High School
BMI body mass index
CBO community-based organization
CCMC Cohen Children’s Medical Center
CCNY Child Center of New York
CDC Centers for Disease Control and Prevention
ECE early childhood education
ED U.S. Department of Education
eHEALS eHealth Literacy Scale
HAS Health Advocacy Summit
HHS U.S. Department of Health and Human Services
HRSA Health Resources and Services Administration
IEP individualized education program
IOM Institute of Medicine
IRB institutional review board
KSS Kids SIPsmartER Study
Page xviii Cite
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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LTA less than adequate
NHES National Health Education Standards
NHW non-Hispanic white
NIH National Institutes of Health
NIMHD National Institute on Minority Health and Health Disparities
NVS Newest Vital Sign
PAL Preparation for Adult Living
PAM Patient Activation Measure
Pre-K prekindergarten
QUICCC–R Questionnaire for Identifying Children with Chronic Conditions–Revised
REALM Rapid Estimate of Adult Literacy in Medicine
SHCN special health care needs
SOPHE Society for Public Health Education
SSB sugar-sweetened beverage
STEM science, technology, engineering, and mathematics
TRAQ Transition Readiness Assessment Questionnaire
W.E.I.G.H.T. Working to Engage Insulin-Resistant Group Health Using Technology
WSCC Whole School, Whole Community, Whole Child
Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Suggested Citation:"Front Matter." National Academies of Sciences, Engineering, and Medicine. 2020. Developing Health Literacy Skills in Children and Youth: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/25888.
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Young people develop health literacy skills in a variety of environments, facing critical thinking challenges about their health from school, home and family life, peers and social life, and online. To explore the development of health literacy skills in youth, the Roundtable on Health Literacy convened a workshop on November 19, 2019, in Washington, DC. Presenters at the workshop discussed factors relating to health literacy skills and ways to further develop those skills among youth from early childhood to young adulthood. This publication summarizes the presentation and discussion of the workshop.

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