Advancing Research on Chronic Conditions in Women (2024)

Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

Appendix B Open Session Agendas Monday, April 17, 2023, 1:00 p.m.–1:45 p.m. (ET) Web Conference Open Session Agenda 1:00–1:05 Welcome and introductions Eve Higginbotham, Committee Chair 1:05–1:35 Charge to the Committee and Background on NIH Office of Research on Women's Health (ORWH) Sarah Temkin, Associate Director for Clinical Research Elizabeth Barr, Social and Behavioral Scientist Administrator 1:35–1:45 Discussion 1:45 Open session adjourns PREPUBLICATION COPY: UNCORRECTED PROOFS 

2 ADVANCING RESEARCH ON CHRONIC CONDITIONS IN WOMEN Wednesday, May 31, 2023, 10:00 a.m.–2:20 p.m. (ET) Hybrid (Web & In-person) Conference Open Session Agenda 10:00–10:05 Welcome and introductions; conduct of the open session Eve Higginbotham, MD, Committee Chair 10:05–11:35 Perspectives on Women’s Health Research on Chronic Debilitating Conditions 10:05–10:35 Janine Clayton, MD, NIH Office of Research on Women’s Health • An overview and scope of the ORWH, promoting a research portfolio on chronic debilitating conditions in women, The U3 framework, efforts and initiatives for workforce and career development 10:35–11:05 Holly Moore, PhD, National Institute on Drug Abuse • Multimorbidity and chronic debilitating conditions- considerations and priorities, methods and approaches, research and knowledge gaps 11:05–11:35 Marjorie Jenkins, MD, MEdHP FACP, University of South Carolina School of Medicine Greenville • A framework for promoting and advancing women’s health research, knowledge and research gaps on chronic debilitating conditions 11:35–12:05 Lunch/Break 12:05–1:35 Advocacy and Policy Perspectives Denise Hyater-Lindenmuth, MBA, MA, National Women’s Health Network PREPUBLICATION COPY: UNCORRECTED PROOFS 

APPENDIX B 3 Kathryn G. Schubert, MPP, CAE, Society for Women's Health Research Carolee Lee, Women’s Health Access Matters 1:35–2:20 Panel on Patient Perspectives and Lived Experiences Moderator: Cynthia Boyd, MD, MPH, Committee Member Diana Falzone, The Endometriosis Foundation of America Annika Ehrlich, MS, FNP-C, AQH, CNRN, Alliance for Headache Disorders Advocacy Ayesha Patrick, Autoimmune Association Wendy Rodgers, MEd, MPH, Lupus Foundation for America 2:20 Open Session Adjourns Wednesday, August 9, 2023, 12:00 p.m.–3:15 p.m. (ET) Web Conference Open Session Agenda 12:00–12:05 Welcome and introductions; conduct of the open session Eve Higginbotham, MD, Committee Chair 12:05–2:05 Research on Chronic Conditions in Women 12:05–1:00 Adverse childhood experiences and the development of chronic conditions in women: epidemiology, risk factors, knowledge, and research gaps Charles Nemeroff, MD, PhD, The University of Texas at Austin Dell Medical School PREPUBLICATION COPY: UNCORRECTED PROOFS 

4 ADVANCING RESEARCH ON CHRONIC CONDITIONS IN WOMEN Nadine Burke Harris, MD, MPH, Founder of Center for Youth Wellness and former Surgeon General of California 1:00–1:30 Multimorbidity Research Gaps and Recommendations Holly Moore, PhD, National Institute on Drug Abuse 1:30–2:00 Prevention and impact of osteoporosis, aging-related skeletal muscle dysfunction, and frailty in women Bess-Dawson Hughes, MD, Tufts University School of Medicine 2:00–2:30 An analysis of research funding on chronic conditions in women Arthur Mirin, PhD, Independent Researcher, California, USA 2:30–3:15 Panel on Patient Perspectives and Lived Experiences 3:15 Open Session Adjourns PREPUBLICATION COPY: UNCORRECTED PROOFS