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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 85
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 86
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 87
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 88
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 89
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 90
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Page 91
Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Suggested Citation:"Appendix B: Speaker Biographical Sketches." Institute of Medicine. 2015. Improving Genetics Education in Graduate and Continuing Health Professional Education: Workshop Summary. Washington, DC: The National Academies Press. doi: 10.17226/18992.
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Below is the uncorrected machine-read text of this chapter, intended to provide our own search engines and external engines with highly rich, chapter-representative searchable text of each book. Because it is UNCORRECTED material, please consider the following text as a useful but insufficient proxy for the authoritative book pages.

B Speaker Biographical Sketches Samantha Bazan, M.S., earned her bachelor of science in nursing from George Mason University in 2004. She received a master of science with a concentration in disaster management from Trident University in 2012. In May 2004, she commissioned into the Army Nurse Corps. She started her nursing career at Fort Sill, Oklahoma, as a medical–surgical nurse and quickly deployed to Baghdad, Iraq, with the 10th Combat Support Hospital working in the intensive care unit. She has also worked in the emergency room and specialized as an army public health nurse in 2008. Samantha Bazan is still on active duty. In 2013 she was accepted into the Doctor of Nursing Practice for Family Nurse Practitioner program at the Uniformed Services University of the Health Sciences. Her awards include Meritorious Service Medal, the Army Commendation Medal with two Oak Leaf Clusters, the Army Achievement Medal, the Overseas Service Ribbon, Iraq Campaign Medal, Global War on Terrorism Service Medal, National Defense Service Ribbon, and the Army Service Ribbon. She served with one unit that received the Meritorious Unit Commendation. Bruce D. Blumberg, M.D., is the director of graduate medical education (the resident physician training programs) for Northern California Kaiser Permanente. He currently maintains a clinical practice in medical genet- ics at Kaiser Permanente Oakland. He is a clinical professor of pediatrics at the University of California, San Francisco, and an adjunct clinical professor of pediatrics at Stanford University School of Medicine. His clinical interests within genetics are broad, and he has a subspecialty inter- est in inherited disorders of skeletal and connective tissue development. His research interest is in the area of the psychosocial and emotional as- 81

82 IMPROVING GENETICS EDUCATION pects of prenatal diagnosis. Dr. Blumberg holds a medical degree from Yale University School of Medicine and completed his residency in pe- diatrics at Stanford University Hospital and the University of California, Los Angeles, Center for the Health Sciences as well as a fellowship in medical genetics at Harbor–UCLA Medical Center. He also received a B.A. from Dartmouth College. David A. Davis, M.D., FCFP, is the senior director of continuing educa- tion and performance improvement at the Association of American Med- ical Colleges (AAMC). Prior to this role, Dr. Davis was a family physician in Ontario, Canada, for nearly 40 years. For much of that time, he was active in continuing medical education (CME) as chairman of an all-staff interprofessional continuing education program at a community hospital; director of CME and subsequently chair of continuing educa- tion at McMaster University’s Faculty of Health Sciences; associate dean of continuing education and founding director of the Knowledge Transla- tion (Implementation Science) Program in the Faculty of Medicine, Uni- versity of Toronto; and chairman of Ontario’s Guidelines Advisory Committee. This last role allowed Dr. Davis to explore and test models of clinical practice guideline development, adaptation, and implementation of best evidence on a province-wide basis. Dr. Davis has also developed an innovative comprehensive competency assessment program for the provin- cial licensing body, and he helped create a center for faculty development and a mini-med school at the University of Toronto. Emphasizing the evalu- ation of educational activities using a rigorous outcomes-testing approach, he has acted as principal investigator, co-principal investigator, or investiga- tor on grants totaling several million dollars. This emphasis has seen the publication of 125 peer-reviewed papers in addition to dozens of ab- stracts, book chapters, 2 major books on CME practices, and presenta- tions on four continents. His (and colleagues’) 1995 Journal of the American Medical Association systematic review of the effect of CME interventions is widely cited as a seminal study in this field. Finally, Dr. Davis has been chair or president of national or provincial Canadian or- ganizations, two North American organizations (the Alliance for Contin- uing Medical Education and the Society for Academic Continuing Medical Education) and the Guidelines International Network, a global organization dedicated to the development and implementation of evi- dence-based clinical practice guidelines. His current role in AAMC per- mits him the opportunity to work with individuals, associations, groups,

APPENDIX B 83 and academic medical centers to create scholarly, integrated models of effective, performance-based continuing education. Alexander M. Djuricich, M.D., the associate dean for continuing medical education at the Indiana University School of Medicine (IUSM), grew up in Chicago. After undergraduate work at Northwestern University, he completed medical school at Loyola University Stritch School of Medicine in Chicago in 1998, then came to IUSM for his residency in combined internal medicine–pediatrics (“med–peds,” for short) from 1994 to 1998. He worked as a primary care med–peds physician from 1998 to 2001, also completing the Michigan State Primary Care Faculty Development Fellowship Program in 2001. He returned to IUSM in 2001, with a growing interest in resident education over the next 10 years, first as associate program director, then as program director of the Medicine–Pediatrics Residency Program. He was the medical director for quality improvement at Riley Hospital for Children from 2006 to 2011. He served as the president of the Medicine–Pediatrics Program Directors’ Association from 2010 to 2011. His areas of interest include quality improvement and patient safety, emerging technology in medicine and medical education, health care provider involvement in social media, and medical education for residents and faculty. Geoffrey Ginsburg, M.D., Ph.D., is the founding director for the Center for Applied Genomics in the Duke University Medical Center and the founding executive director of the Center for Personalized and Precision Medicine in the Duke University Health System. He is a professor of medicine, pathology, and biomedical engineering at Duke University. He is an internationally recognized expert in genomics and personalized medicine with funding from the National Institutes of Health, Depart- ment of Defense, Air Force, Defense Advanced Research Projects Agen- cy, the Gates Foundation, and industry. Prior to Duke he was at Millennium Pharmaceuticals Inc., where he was vice president of molec- ular and personalized medicine and responsible for developing phar- macogenomic and biomarker strategies for therapeutics. He serves as an expert panel member for Genome Canada, as a member of the board of external experts for the National Heart, Lung, and Blood Institute, as co- chair of the IOM’s Roundtable on Translating Genomic-Based Research for Health, as a member of the advisory council for the National Center for Advancing Translational Sciences, as co-chair of the Cures Accelera- tion Network, as an advisor to the Pharmacogenetics Research Network,

84 IMPROVING GENETICS EDUCATION and as a member of the World Economic Forum’s Global Agenda Coun- cil on the Future of the Health Sector. Constance Goldgar, M.S., PA-C, is an associate professor and associate director at the University of Utah Physician Assistant Program in the Department of Family and Preventive Medicine. Before coming to physician assistant education 15 years ago, Ms. Goldgar worked in genetic epidemiology research for 8 years at the University of Utah. Her areas of expertise in teaching are genetics and evidence-based medicine. She helped author an interactive educational website sponsored by the National Coalition for Health Professional Education in Genetics for physician assistants, through which, in part, she received the Michael J. Scotti, Jr. Award. She is also an editorial and advisory member for the National Institutes of Health–funded interprofessional Genetics Genomics Competency Center for Education. Samuel G. Johnson, Pharm.D., BCPS, earned his B.S. in biology from Truman State University in 1998, followed by earning his Pharm.D. from the University of Missouri–Kansas City in 2003. Outside of academics, Dr. Johnson was very active in several student organizations: the American Pharmaceutical Association–Academy of Students of Pharmacy, the Student Society for Health Systems Pharmacists, and Kappa Psi, among others. Dr. Johnson embarked on his professional career at Kaiser Permanente Colorado (KPCO) in 2004 as a clinical pharmacy specialist. For the next 2.5 years he maintained an active clinical and teaching practice within the Clinical Pharmacy Anticoagulation Service, until accepting a position in late 2006 as clinical pharmacy specialist in cardiology. In 2011 he left his post in cardiology for a newly created position as a clinical pharmacy specialist in applied pharmacogenomics, and he is currently responsible for leading the clinical implementation efforts for the application of pharmacogenomics within KPCO. In addition to his daily work responsibilities, he is actively engaged in teaching at two local schools of pharmacy and in research efforts for the Clinical Pharmacy Research Team. In 2010 he was awarded the Kaiser Permanente Colorado Summit Award for outstanding individual achievement. In 2009 he was awarded the “RxCellence” Award in recognition of outstanding contributions to the Pharmacy Department. Dr. Johnson is a past secretary/treasurer for the Cardiology Practice and Research Network of the American College of Clinical Pharmacy and has served as StuNet Liaison since 2008. He also currently

APPENDIX B 85 serves as a vice chair for the Colorado Medicaid Drug Utilization Review Board as well as the community practitioner representative for the University of Colorado Skaggs School of Pharmacy and Pharmaceutical Sciences Non-Traditional Pharm.D. Program Committee. Ann Karty, M.D., FAAFP, joined the American Academy of Family Physicians (AAFP) in 2009 and leads AAFP’s continuing medical education (CME) efforts by representing AAFP in its external relationships with other accrediting and educational organizations. Along with oversight of AAFP CME activity content, Dr. Karty works with teams creating innovative educational formats, CME planning at the annual AAFP assembly, and the AAFP credit system. She is currently involved in the risk evaluation mitigation strategies team at AAFP and has represented the academy at national organizations, including FDA and the Council of Medical Specialty Societies, where she also currently serves as the chair of the CME director component group. Just prior to joining the AAFP staff, Dr. Karty served as an associate professor in the Department of Family Medicine at the Kansas City University of Medicine and Biosciences College of Osteopathic Medicine (KCUMB) while she maintained her own private practice. Dr. Karty also served as the associate program director for the Medical Center of Independence–KCUMB family medicine residency program and has had multiple academic appointments at the state level. Dr. Karty has been an active member of AAFP since 1989. Throughout her career Dr. Karty has presented and moderated numerous CME sessions at the local and national level. Internationally, Dr. Karty serves as a co-chair of the Hadassah Physicians’ Council and has served many years on the steering committee for the Hadassah CME committee, which coordinated its first CME meeting hosted by Israeli physicians in 2008. Since that time she has moderated several of the CME sessions in Israel, and Dr. Karty is currently serving her fourth term as co-chair for the November 2014 international meeting. Dr. Karty is board certified in family medicine and is a fellow of AAFP. She holds medical licenses in Illinois, Kansas, Missouri, and South Carolina. She received a bachelor of arts degree in biology and a medical degree from the University of Missouri–Kansas City School of Medicine and is currently pursuing a master of business administration from the University of Kansas School of Business.

86 IMPROVING GENETICS EDUCATION Murray Kopelow, M.D., M.S. (Comm), FRCPC, is the president and chief executive officer of the Accreditation Council for Continuing Medical Education (ACCME), where he leads ACCME’s efforts to identify, develop, and promote national standards for quality continuing medical education (CME) that improves physician competence and performance and contributes to improving medical care for patients and their communities. Dr. Kopelow is responsible for the implementation of the ACCME system for accrediting U.S. institutions that offer CME and for the ACCME system of recognizing state and territory medical societies as accreditors for intrastate CME providers. Dr. Kopelow has overseen the evolution of the accreditation system, including the 2004 update of the ACCME’s Standards for Commercial Support: Standards to Ensure Independence and the introduction of the 2006 Accreditation Criteria, which position accredited CME as a Bridge to Quality™. Dr. Kopelow has advised CME accreditation systems around the world and collaborated on the creation of a substantial equivalency recognition process for CME systems outside the United States. From June through December 2009, Dr. Kopelow served as a special advisor to the Office of Demand Reduction within the Office of National Drug Control Policy of the Executive Office of the President of the United States. From 2010 through the present, he has worked with the FDA, health care education accreditors, and industry to facilitate the role of accredited CME in supporting FDA’s risk evaluation and mitigation strategy for opioid medications. A native of Canada, Dr. Kopelow holds a medical degree from the Faculty of Medicine, University of Manitoba, and a master’s of science in communications systems from the Department of Communications Studies at Northwestern University. He is a fellow of the Royal College of Physicians and Surgeons of Canada and a successful participant in that organization’s maintenance of certification program. Grace M. Kuo, Pharm.D., M.P.H., Ph.D., FCCP, received her bachelor of science degree in psychobiology from the University of California, Los Angeles, followed by her bachelor of science degree in pharmacy from the Massachusetts College of Pharmacy. She then completed her doctor of pharmacy degree from Oregon State University, Oregon Health Sciences University. Her postdoctoral training was at the W.G. Magnuson Clinical Center at the National Institutes of Health in Maryland. She subsequently earned both her master of public health degree and her doctor of philosophy degree in public health from the University of Texas Health Science Center at Houston School of Public Health. Currently she is a

APPENDIX B 87 professor of clinical pharmacy, adjunct professor of family and preventive medicine, and associate dean for academic clinical affairs at the University of California, San Diego, Skaggs School of Pharmacy and Pharmaceutical Sciences. Dr. Kuo’s clinical expertise is primary care practice. Being a pharmacist health services researcher, Dr. Kuo devotes her efforts in practice-based research that focuses on medication safety and medication therapy management. Working with experts and national leaders, Dr. Kuo and her team have developed and administered the national pharmacogenomics education program (PharmGenEd). Using a peer- reviewed shared curriculum, the PharmGenEd team disseminates emerging scientific information about pharmacogenomics applicable to patient care. To date, PharmGenEd has been used by more than 3,000 health care professionals and faculty from 86 health professional schools. Rebecca S. Lipner, Ph.D., is the senior vice president of evaluation, research, and development for the American Board of Internal Medicine (ABIM), where she oversees the scoring, statistical analysis, standard setting, equating, security, and evaluation of measurement properties for ABIM assessment products. She also oversees quantitative research analysis ranging from internal medicine workforce trends to health outcomes research. Dr. Lipner has expertise in performance measurement, working with clinical and patient experience/satisfaction survey data on the scientific acceptability of a measure’s properties, including reliability, validity, risk adjustment, usability, and sampling strategies. She has developed a unique weighted average composite score and standard- setting methodology for assessing physician performance, which has been patented. Dr. Lipner also has expertise in the field of measurement in general, including testing of physician’s problem-solving skills through clinical vignettes as well as procedural skills through high- fidelity simulation. Dr. Lipner is a frequent speaker on these subjects and is widely published in professional journals, including the Journal of the American Medical Association, Annals of Internal Medicine, Academic Medicine, Applied Measurement in Education, and the Journal of Educational Measurement. Prior to joining ABIM, Dr. Lipner held a variety of teaching and faculty positions at Drexel University, St. Joseph’s University, and the University of Pittsburgh, where she taught undergraduate and graduate courses in statistics, tests and measurement, experimental design, systems analysis and design, and expert systems.

88 IMPROVING GENETICS EDUCATION Michael F. Murray, M.D., is the co-chair of the Inter-Society Coordinating Committee for Practitioner Education in Genomics (www.genome.gov/27554614), which was launched in 2013, through the leadership of the National Human Genome Research Institute, with the goal of bringing together professional organizations within clinical medicine to improve genomic literacy. Dr. Murray is boarded in internal medicine and medical genetics and he joined Geisinger Health System in Pennsylvania as the director of clinical genomics in 2013 after serving as the clinical chief of genetics at Brigham and Women’s Hospital in Boston for 9 years. While in Boston he launched and directed the Harvard Medical School continuing medical education course “The Genetic and Genomic Basis of Adult Medicine: What the Primary Care Provider Needs to Know.” He also served as the first program director of the combined residency in internal medicine and medical genetics, which was part of the Harvard Genetics Training Program. He is the lead editor of the genomics textbook for practicing clinicians, Clinical Genomics: Practical Applications for Adult Patient Care (McGraw-Hill, 2013). His patient care responsibilities have included running the Adult Genetics Clinic at Brigham and Women’s Hospital and initiating a personalized genomic consult service there. At Geisinger he is leading the clinical return of results program for 100,000 participants who will undergo genomic sequencing as part of the health system’s biobank program (MyCode). Perry A. Pugno, M.D., M.P.H., FAAFP, FACEP, FACPE, is a 1970 graduate of the University of California, Riverside, and a 1974 graduate of the University of California, Davis, School of Medicine. Dr. Pugno completed his University of California, Los Angeles–affiliated family medicine residency at Ventura General Hospital. Following a tour of duty with the National Health Service Corps in Barstow, California, he entered the sphere of graduate medical education as a residency director, and he has accumulated more than 20 years of experience in that role. He has worked in programs from California to Connecticut, including public, private, and university-sponsored settings. He is board certified in both family medicine and emergency medicine, and he has added experience as the director of a trauma center, a hospital chief medical officer, a public health officer, and a medical director of a health plan. His M.P.H. from Loma Linda University is in multidisciplinary educational administration, and he is a fellow of the American College of Physician Executives. He has served as the president of the Association

APPENDIX B 89 of Family Medicine Residency Directors, president of the University of California Medical Alumni Association, and chair of the Residency Review Committee for Family Medicine at the Accreditation Council for Graduate Medical Education, and he is the founding chair of the National Institute for Program Director Development. His previous experience in corporate physician leadership and managed care was as the vice president for graduate medical education and medical affairs with Mercy Healthcare Sacramento, a division of Catholic Healthcare West (now Dignity Health). Dr. Pugno retired in 2014 from the position of vice president for education for the American Academy of Family Physicians (AAFP). In that position he was responsible for AAFP initiatives related to medical school, graduate, and continuing medical education, including supervision of the Residency Program Solutions consulting panel and providing staff direction for academy workforce policy and graduate medical education advocacy. Benjamin Raby, M.D., is a pulmonologist and genetic epidemiologist with expertise in the genetics and genomics of asthma. He is an associate professor of medicine at the Brigham and Women’s Hospital (BWH) and Harvard Medical School. He is the founder and director of the BWH Pulmonary Genetics Center and the principal investigator of multiple National Heart, Lung, and Blood Institute–sponsored grants focused on genomic approaches in asthma and other lung diseases, and he has published more than 120 original science manuscripts in these fields. He is section editor for genetics at UpToDate, Inc., and he is an editorial board member of several subspecialty journals, including the American Journal of Respiratory and Critical Care Medicine and Allergy. Maren T. Scheuner, M.D., M.P.H., is an internist and medical geneticist specializing in the field of common disease genetics with more than 20 years of experience providing clinical genetic services. She divides her time between her clinical practice of adult genetics and health services and implementation research. She began her research career in 2005 and she has had continuous funding from the National Institutes of Health (the National Human Genome Research Institute, National Cancer Institute, and National Heart, Lung, and Blood Institute), the Centers for Disease Control and Prevention, and the Department of Veterans Affairs ever since. She has authored more than 50 publications and is a nationally recognized expert on adult genetics and health services genomics. Her areas of interest include genetic risk assessment for chronic

90 IMPROVING GENETICS EDUCATION diseases of adulthood; health services and policy research in genetic/genomic medicine; assessment of genetic/genomic technologies; health information technology and genomics; development and evaluation of family history tools for public health and preventive medicine practice; implementation, surveillance and outcomes research in medical genetics/genomics; and professional education in genetics/genomics. Joan A. Scott, M.S., C.G.C., is the chief of the Genetic Services Branch in the Division of Children with Special Health Needs of the Maternal and Child Health Bureau at the Health Resources and Services Admin- istration (HRSA). She is a certified genetic counselor with more than 35 years’ experience in clinical genetics, genetics education, laboratory medicine, the biotechnology industry, and the ethical, legal, social, and policy implications of advances in genomics. Ms. Scott’s career has fo- cused on the application of genomic discoveries to health care. Prior to coming to HRSA, she was the executive director of the National Coali- tion for Health Professional Education in Genetics (NCHPEG), where she led a national effort to promote health professional education and access to information about advances in human genetics, and she was a research scientist in the Berman Institute of Bioethics at Johns Hopkins University, where she studied public and stakeholder attitudes about ge- nomics. Prior to joining NCHPEG, Ms. Scott was the director of the Ge- netics and Public Policy Center at Johns Hopkins University, which was established to fill an important niche in the science policy landscape. There she led the center’s efforts to address policy issues related to ad- vances in genetics, genetic testing quality and oversight, and public en- gagement in genetic research. Prior to coming to the center in 2002, Ms. Scott was a director in GeneLogic, Inc., overseeing the operations of a large biorespository for use in genomic discovery. She also served as general manager and director of genetic services at the clinical diagnostic lab OncorMed from 1994 to 1998. Clinically, she has practiced in a vari- ety of academic, outreach, and private practice settings, including pediat- ric, adult, and reproductive genetic clinics. Ms. Scott is a past president of the National Society of Genetic Counselors and a founding member of the American Board of Genetic Counseling. She has served on numerous national committees and work groups, including the Evaluation of Ge- nomic Applications in Practice and Prevention Working Group; the Sec- retary’s Advisory Committee on Genetics, Health, and Society Task Force on DTC Genetic Testing; the Maryland Insurance Administration Workgroup on Genetic Testing; the National Cancer Institute’s CaHUB

APPENDIX B 91 Advisory Committee; and the Genetic Alliance Biobank Advisory Board. Ms. Scott holds an M.S. (Human Genetics Program) from Sarah Law- rence College and a B.A. in anthropology and zoology from Kent State University. She has been certified by the American Board of Medical Genetics with a subspecialty in genetic counseling, and she was recerti- fied by the American Board of Genetic Counseling in 2006. Diane C. Seibert, Ph.D., ARNP, FAAN, FAANP, is a professor in and the chair of the family nurse practitioner program at the Uniformed Services University of the Health Sciences in Bethesda, Maryland. She is certified as both a women’s health and an adult nurse practitioner, and she maintains an active clinical practice at the National Naval Medical Center in Bethesda, Maryland. Dr. Seibert has published and presented to a variety of audiences on women’s health and genetics. She helped establish national and international provider competencies, developed new curriculums to ensure quality and consistent genomic care, and is involved in several national task forces and committees working toward improving the genetics competency of the nursing workforce across all practice settings. She has played a key role in the development of international genomic research priorities and a pioneering practice change model in collaboration with the U.S. Genetic/Genomic Nursing Competency Initiative. Dr. Seibert received her B.S.N. from Kent State University, her master’s degree from the University of Maryland at Baltimore, and her Ph.D. from the University of Maryland, College Park. Jean Silver-Isenstadt, M.D., Ph.D., serves as the executive director of the National Physicians Alliance and was actively involved in the organization’s founding. She holds a doctorate in the history and sociology of medicine from the University of Pennsylvania, a medical degree from the University of Maryland, and a master’s degree in nonfiction and science writing from Johns Hopkins University. Her doctoral work focused on 19th-century American health reform. She is the author of Shameless: The Visionary Life of Mary Gove Nichols (Johns Hopkins University Press, 2002), a biography of the infamous and influential health advocate and social reformer best known for her leadership of the water-cure movement and for her scandalous public lectures to women on anatomy and physiology. Sharon Terry, M.A., is the president and chief executive officer of the Genetic Alliance, a network of more than 10,000 organizations, 1,200 of

92 IMPROVING GENETICS EDUCATION which are disease advocacy organizations. Genetic Alliance improves health through the authentic engagement of communities and individuals. It develops innovative solutions through novel partnerships, connecting consumers to smart services. She is the founding chief executive officer of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). As co-discoverer of the gene associated with PXE, she holds the patent for ABCC6 and has as- signed her rights to the foundation. She developed a diagnostic test and is conducting clinical trials. Ms. Terry is also a co-founder of the Genetic Alliance Registry and Biobank. She is the author of more than 90 peer- reviewed articles. In her focus at the forefront of consumer participation in genetics research, services, and policy, she serves in a leadership role on many of the major international and national organizations, including the IOM Board on Health Sciences Policy, the National Coalition for Health Professional Education in Genetics board, and the International Rare Disease Research Consortium Interim Executive Committee, and she is co-chair of the IOM Roundtable on Translating Genomic-Based Research for Health. She is on the editorial boards of several journals. She was instrumental in the passage of the Genetic Information Nondis- crimination Act. In 2005 she received an honorary doctorate from Iona College for her work in community engagement; in 2007, she was awarded the first Patient Service Award from the University of North Carolina Institute for Pharmacogenomics and Individualized Therapy; in 2009, she received the Research!America Distinguished Organization Advocacy Award; and in 2011, she won the Clinical Research Forum and Foundation’s Annual Award for Leadership in Public Advocacy. She is an Ashoka Fellow. Kevin B. Weiss, M.D., M.P.H., has devoted his medical career to issues of health care quality, equity and access to care, and training physicians and other health care providers in health care improvement. As the senior vice president for institutional accreditation at the Accreditation Council for Graduate Medical Education (ACGME), he is responsible for the new Clinical Learning Environment Review (CLER) program. He also co- chairs the CLER evaluation committee and oversees the ACGME’s Institutional Review Committee’s accreditation activities. Prior to coming to ACGME, Dr. Weiss served as president and chief executive officer of the American Board of Medical Specialties (ABMS) from 2007 to 2012. While at ABMS he broadened public involvement in the board’s activities; implemented both its ethics and professionalism and health

APPENDIX B 93 and public policy programs; established alignment with maintenance of licensure; and, as part of health care reform, aligned maintenance of certification with the Medicare Physician Quality Reporting Initiative and established ABMS–International. He has served various roles on committees for the National Quality Forum, the National Committee for Quality Assurance, and the American Medical Association’s Physicians Consortium for Performance Improvement. He has served as a member of the American College of Physicians’ board of regents and chaired its committees for clinical guidelines and performance measurement. Dr. Weiss currently serves on the board of directors for the Educational Commission for Foreign Medical Graduates and has served on committees for the IOM, including those which developed the reports Crossing the Quality Chasm and Identifying Priority Areas for Quality Improvement. Over the years Dr. Weiss has conducted federally funded U.S. and international epidemiological and health services research projects related to guideline implementation, chronic care management, outcomes measurement, quality improvement, and health care equity and has published more than 200 articles, reviews, books, book chapters, and monographs. In 2005 Dr. Weiss established the first U.S. graduate-level master’s and Ph.D. degree programs in patient safety and health care quality at Northwestern University. Dr. Weiss is certified in internal medicine by the American Board of Internal Medicine. He also maintains a role as a professor of clinical medicine in the Division of General Medicine and in the Center for Healthcare Studies in the Feinberg School of Medicine at Northwestern University.

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Many health care providers do not have either the knowledge or the tools they need in order to apply genetic information in their day-to-day practices. This lack of support is contributing to a substantial delay in the translation of genetic research findings, when appropriate, into improvement in patient outcomes within the health care system. Although the need to improve genetics knowledge among health care providers is clear, the best approaches to educating health care providers in a way that produces meaningful changes in clinical practice are not, especially given the competing coursework and training needs that exist in today's increasingly complex health care settings.

To examine the potential and the challenges of providing genetics education, the Roundtable on Translating Genomic-Based Research for Health of the Institute of Medicine hosted a workshop on August 18, 2014. The workshop examined a variety of approaches that could improve the teaching of genetics in the graduate and continuing education of health professionals; these approaches included online and interactive instruction, just-in-time approaches, the development of clinical decision-support tools, and the incorporation of genetics requirements into licensing and accreditation. This report summarizes the presentations and discussion of the event.

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