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Appendix A Measures Evaluated by the Committee The table in this appendix lists the measures used in federally sponsored surveys and other data collection approaches to measure sexual orientation and gender identity that the committee considered. 173
TABLE A-1â Sexual Orientation and Gender Identity Measures by Survey 174 Â Â Measure(s) Â Â Â Gender Identityb Sexual One-Step Two-Step Name of Data Collection Instrument Sponsora Orientation Approach Approach Population Data Type Mode(s) All of Us NIH X Â X All ages Medical CATI, P&P American National Election Studies NSF X X Adults (eli- Survey Web, CAPI, (ANES) gible voters) CASI, CATI, Video Behavioral Risk Factor Surveillance CDC X Xc Â Adults Survey CATI System (BFRSS) Center for Substance Abuse Treat- SAMHSA Â X Â Youth and Admin n/a mentâGovernment Performance Adults Results and Modernization Act (CSAT-GPRA) Centers for Disease Control and CDC X X n/a Medical n/a Prevention Recommendations for Health Care Providers (CDC Recs) Gallup Gallup Xd Adults Survey CATI General Social Survey (GSS) NSF X XÂ Adults Survey CAPI (SAQ)
Growing Up Today Study (GUTS) NIH X Young Adults Survey P&P (20s) Web Health Center Patient Survey (HCPS) HRSA X Â Â All ages Admin CAPI ASPEe Health and Retirement Study (HRS) NIH, SSA, X Older adults Survey CAPI CATI DOL, ASPE, State of Florida High School Longitudinal Study of NCES X Â X Young adults Survey Web 2009 (HSLS:09)â2016 Collection 3 (early 20s) CAPI Years After High School Graduation CATI National Adult Tobacco Survey NCHS X X Adults Survey CATI (NATS) National Crime Victimization Survey BJS X Â X Ages 16+ Survey CAPI, (NCVS) CATI National Epidemiologic Survey of NIAAA X Adults Survey CAPI Alcohol and Related Conditions (NESARC) National Health Interview Survey CDC X Â Adults Survey CAPI (NHIS) CATI 175 continued
TABLE A-1â Continued 176 Â Â Measure(s) Â Â Â Gender Identityb Sexual One-Step Two-Step Name of Data Collection Instrument Sponsora Orientation Approach Approach Population Data Type Mode(s) National Health and Nutrition Ex- CDC X Adults Survey CAPI amination Survey (NHANES) National HIV Behavioral Surveillance CDC X Â X Adults (high Survey CAPI (NHBS) HIV risk) National Inmate Survey (NIS) BJS X X Ages 16+f Survey ACASI National Intimate Partner and Sexual CDC, X Â Adults Survey CATI Violence Survey (NISVS) DOD, NIJ National Longitudinal Study of Multipleg X Â X Adults Survey Web, P&P, Adolescent and Adult Health, Wave V CAPI, (Add Health) CASI, CATI National Opinion Research Cen- CMS X X Ages 60+ Survey n/a ter (NORC) recommendations for Medicare Current Beneficiary Survey (MCBS) National Outcome Measures, Center SAMHSA X Xh Adults Admin n/a for Mental Health Services (NOM) CMHS National Survey of Drug Use and SAMHSA X Â Adults Survey ACASI Health (NSDUH) National Survey of Family Growth CDC X Ages 15â49 Survey CAPI, (NSFG) ACASI
National Survey of Older Americans AOA X Age 60+ Survey CATI Act Participants (NSOAAP) Admin Population Assessment of Tobacco NIDA, X X Â Ages 14+ Survey ACASI, and Health Study (PATH) NIH, CTP, CAPI FDA Survey of Todayâs Adolescent Rela- CDC X X Ages 13â24i Survey Web, Focus tionship and Transitions (START) Groups GenIUSS Report Recommendations Williams X X Â X Adults Survey n/a Institute Youth Risk Behavior Surveillance CDC X Â Â Grades 9â12 Survey P&P System (YRBSS) NOTES: ACASI, audio computer-assisted self-interview; AOA, Administration on Aging; ASPE, U.S. Department of Health and Human Services Office of the Assistant Secretary of Planning and Evaluation; BJS, Bureau of Justice Statistics; CAPI, computer-assisted personal interview; CASI, computer-assisted self-interview; CATI, computer-assisted telephone interview; CDC, Centers for Disease Control and Prevention; CMHS, Center for Mental Health Services; CMS, Center for Medicare and Medicaid Services; CTP, Center for Tobacco Products; DOD, U.S. Department of Defense; DOL, U.S. Department of Labor; FDA, Food and Drug Administration; HRSA, Health Resources and Services Administration; NCES, National Center for Education Statistics; n/a, not applicable; NCHS, National Center for Health Statistics; NIAAA, National Institute on Alcohol Abuse and Alcoholism; NIDA, National Institute on Drug Abuse; NIH, National Institutes of Health; NIJ, National Institute of Justice; NSF, National Science Foundation; P&P, paper and pencil; SAMHSA, Substance Abuse and Mental Health Services Administration; SAQ, self-administered questionnaire; SSA, Social Security Administration. aSponsors cited are drawn from websites and publicly available survey documentation. bSingle-step gender identity measures use a single question to assess gender identity and transgender experience or identity. Two-step measures use a sequence of two questions that can be compared to identify respondents with transgender experience. cBeginning in 2019, BRFSS added a measure of sex assigned at birth to the approved optional sexual orientation and gender identity module. This module has included a stand-alone measure of transgender status since 2014. continued 177
TABLE A-1â Continued 178 dThe Gallup measure is a measure of LGBT status that instructs respondents to select all that apply from the following response options: straight or heterosexual; lesbian; gay, bisexual; and transgender. eThe U.S. Department of Health and Human Services Office of the Assistant Secretary of Planning and Evaluation (ASPE) provides support for generating public-use data files that can be used for research. fAdults in jails or prisons and juveniles in detention centers. gThe National Survey of Adolescent and Young Adults Health (Add Health) is funded by grant P01-HD31921 from the Eunice Kennedy Shriver National Institute of Child Health and Human Development, with cooperative funding from 23 other federal agencies and foundations. hGuidelines recommend asking respondent to report their gender with an open-ended response field. Instructions tell interviewers they may clarify by asking whether the respondent sees themselves as a man or male, woman or female, transgender, or other. iSexual minority males ages 13â18 years and transgender youth ages 13â24 years when interviewed who were recruited through social media sources.