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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Appendix A

References

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Armenian S. H., M. Xiao, J. B. Teh, B. Lee, H. A. Chang, K. Mascarenhas, S. Lee, A. Iukuridze, J. J. Xie, J. M. Scott, L. W. Jones, F. Wong, S. J. Forman, and R. Nakamura. 2019. Impact of sarcopenia on adverse outcomes after allogeneic hematopoietic cell transplantation. Journal of the National Cancer Institute 111(8):837-844. https://doi.org/10.1093/jnci/djy231.

Arnold, S., D. Ross, C. Sinha, C. Smith, and L. Krishnamurti. 2020. Developing a validated patient-reported outcome instrument to assess financial hardship among hematopoietic cell transplant recipients for sickle cell disease. Quality of Life Research 29 (suppl 1). Netherlands: Springer.

Arora, M., C. L. Sun, K. K. Ness, J. B. Teh, J. Wu, L. Francisco, S. H. Armenian, A. Schad, G. Namdar, A. Bosworth, L. Kuo, D. J. Weisdorf, S. J. Forman, and S. Bhatia. 2016. Physiologic frailty in nonelderly hematopoietic cell transplantation patients: Results from the Bone Marrow Transplant Survivor Study. JAMA Oncology 2(10):1277-1286. https://doi.org/10.1001/jamaoncol.2016.0855.

Arora, M., Y. Chen, J. Wu, L. Hageman, E. Ness, M. Kung, L. Francisco, A. Bosworth, D. J. Weisdorf, S. J. Forman, W. Landier, M. Pamukçuoğlu, S. H. Armenian, F. L. Wong, and S. Bhatia. 2021. Longitudinal trajectory of frailty in blood or marrow transplant survivors: Report from the Blood or Marrow Transplant Survivor Study. Cancer 127(5):794-800. https://doi.org/10.1002/cncr.33313.

Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Aydillo, T., A. S. Gonzalez-Reiche, S. Aslam, A. van de Guchte, Z. Khan, A. Obla, J. Dutta, H. van Bakel, J. Aberg, A. García-Sastre, G. Shah, T. Hohl, G. PapanicOlaou, M. A. Perales, K. Sepkowitz, N. E. Babady, and M. Kamboj. 2020. Shedding of viable SARSCoV-2 after immunosuppressive therapy for cancer. New England Journal of Medicine 383(26):2586-2588. https://doi.org/10.1056/NEJMc2031670.

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Bevans, M., A. El-Jawahri, D. K. Tierney, L. Wiener, W. A. Wood, F. Hoodin, E. E. Kent, P. B. Jacobsen, S. J. Lee, M. M. Hsieh, E. M. Denzen, and K. L. Syrjala. 2017. National Institutes of Health Hematopoietic Cell Transplantation Late Effects Initiative: The Patient-Centered Outcomes Working Group report. Biology of Blood and Marrow Transplantation 23(4):538-551. https://doi.org/10.1016/j.bbmt.2016.09.011.

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Bhatt, N. S., R. Brazauskas, H. R. Tecca, J. Carreras, L. J. Burns, R. Phelan, R. B. Salit, K. L. Syrjala, J.-A. M. Talano, and B. E. Shaw. 2019. Post-transplantation employment status of adult survivors of childhood allogeneic hematopoietic cell transplant: A report from the Center for International Blood and Marrow Transplant Research (CIBMTR). Cancer 125:144-152.

Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Bhatt, N. S., R. Brazauskas, R. B. Salit, K. Syrjala, S. Bo-Subait, H. Tecca, S. M. Badawy, K. S. Baker, A. Beitinjaneh, N. Bejanyan, M. Byrne, A. Dias, N. Farhadfar, C. O. Freytes, S. Ganguly, S. Hashmi, R. J. Hayashi, S. Hong, Y. Inamoto, K. Jamani, K. A. Kasow, N. Khera, M. M. Krem, H. M. Lazarus, C. J. Lee, S. Lee, N. S. Majhail, A. K. Malone, D. I. Marks, L. W. Mau, S. J. Mayo, L. S. Muffly, S. Nathan, T. Nishihori, K. M. Page, J. Preussler, H. G. Rangarajan, S. J. Rotz, N. Salooja, B. N. Savani, R. Schears, T. Schechter-Finkelstein, G. Schiller, A. J. Shah, A. Sharma, T. Wang, B. Wirk, M. Battiwalla, H. Schoemans, B. Hamilton, D. Buchbinder, R. Phelan, and B. Shaw. 2021. Return to work among young adult survivors of allogeneic hematopoietic cell transplantation in the United States. Transplantation and Cell Therapy 27(8):679. https://doi.org/10.1016/j.jtct.2021.04.013.

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De Jong, C. N., E. Meijer, K. Bakunina, E. Nur, M. van Marwijk Kooij, M. R. de Groot, M. van Gelder, J. A. Maertens, J. H. E. Kuball, D. Deeren, B. van der Holt, J. J. Cornelissen, and A. E. C. Broers. 2019. Post-transplantation cyclophosphamide after allogeneic hematopoietic stem cell transplantation: Results of the prospective randomized HOVON-96 trial in recipients of matched related and unrelated donors. Presented at 61st American Society of Hematology (ASH) Annual Meeting and Exposition; December 7-10, 2019; Orlando, FL. Abstract 1.

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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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DeFilipp, Z., F. M. Troschel, D. A. Qualls, S. Li, M. W. Kuklinski, M. E. Kempner, E. Hochberg, Y. B. Chen, A. El-Jawahri, and F. J. Fintelmann. 2018. Evolution of body composition following autologous and allogeneic hematopoietic cell transplantation: Incidence of sarcopenia and association with clinical outcomes. Biology of Blood and Marrow Transplantation 24(8):1741-1747. https://doi.org/10.1016/j.bbmt.2018.02.016.

DeFilipp, Z., A. M. Alousi, J. A. Pidala, P. A. Carpenter, L. E. Onstad, S. Arai, M. Arora, C. S. Cutler, M. E. D. Flowers, C. L. Kitko, G. L. Chen, S. J. Lee, and B. K. Hamilton. 2021. Nonrelapse mortality among patients diagnosed with chronic GVHD: An updated analysis from the Chronic GVHD Consortium. Blood Advances 5(20):4278-4284. https://doi.org/10.1182/bloodadvances.2021004941.

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Derrett, S., M. Herdman, L. G. Ngwira, E. Y. Moore, and J. Jelsma. 2021. A new approach to assessing children’s interpretation of severity qualifiers in a multi-attribute utility instrument–the EQ-5D-Y-5L: Development and testing. Patient 14:591-600. https://doi.org/10.1007/s40271-021-00496-1.

D’Souza, A., C. Fretham, S. J. Lee, M. Arora, J. Brunner, S. Chhabra, S. Devine, M. Eapen, M. Hamadani, P. Hari, M. C. Pasquini, W. Perez, R. A. Phelan, M. L. Riches, J. D. Rizzo, W. Saber, B. E. Shaw, S. R. Spellman, P. Steinert, D. J. Weisdorf, and M. M. Horowitz. 2020. Current use of and trends in hematopoietic cell transplantation in the United States. Biology of Blood and Marrow Transplantation 26(8):e177-e182.

DuHamel, K. N., C. E. Mosher, G. Winkel, L. E. Labay, C. Rini, Y. M. Meschian, J. Austin, P.B. Greene, C. R. Lawsin, A. Rusiewicz, C. L. Grosskreutz, L. Isola, C. H. Moskowitz, E. B. Papadopoulos, S. Rowley, E. Scigliano, J. E. Burkhalter, K. E. Hurley, A. R. Bollinger, and W. H. Redd. 2010. Randomized clinical trial of telephone-administered cognitive-behavioral therapy to reduce post-traumatic stress disorder and distress symptoms after hematopoietic stem-cell transplantation. Journal of Clinical Oncology 28(23):3754-3761. https://doi.org/10.1200/JCO.2009.26.8722.

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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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El-Jawahri, A., T. LeBlanc, H. VanDusen, L. Traeger, J. A. Greer, W. F. Pirl, V. A. Jackson, J. Telles, A. Rhodes, T. R. Spitzer, S. McAfee, Y. A. Chen, S. S. Lee, and J. S. Temel. 2016. Effect of inpatient palliative care on quality of life 2 weeks after hematopoietic stem cell transplantation: A randomized clinical trial. JAMA 316(20):2094-2103. https://doi.org/10.1001/jama.2016.16786.

El-Jawahri, A., L. Traeger, J. A. Greer, H. VanDusen, S. R. Fishman, T. W. LeBlanc, W. F. Pirl, V. A. Jackson, J. Telles, A. Rhodes, Z. Li, T. R. Spitzer, S. McAfee, Y. A. Chen, and J. S. Temel. 2017. Effect of inpatient palliative care during hematopoietic stem-cell transplant on psychological distress 6 months after transplant: Results of a randomized clinical trial. Journal of Clinical Oncology 35(32):3714-3721. https://doi.org/10.1200/JCO.2017.73.2800.

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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Hamilton, B. K., B. E. Storer, W. A. Wood, J. A. Pidala, C. S. Cutler, P. J. Martin, G. Chen, M. E. Flowers, and S. J. Lee. 2020. Disability related to chronic graft-versus-host disease. Biology of Blood and Marrow Transplantion 26(4):772-777. https://doi.org/10.1016/j.bbmt.2019.10.019.

Hamilton, B. K., P. Williams, G. Flore, J. Galvin, J. Turnbull, and J. Yu. 2021. Disability associated with chronic graft-versus-host disease after allogeneic hematopoietic cell transplantation. Blood 138(suppl 1):4060. https://doi.org/10.1182/blood-2021-153201.

Hill, L., A. Alousi, P. Kebriaei, R. Mehta, K. Rezvani, and E. Shpall. 2018. New and emerging therapies for acute and chronic graft versus host disease. Therapeutic Advances in Hematology 9(1):21-46. https://doi.org/10.1177/2040620717741860.

Holmqvist, A. S., Y. Chen, J. Wu, K. Battles, R. Bhatia, L. Francisco, L. Hageman, M. Kung, E. Ness, M. Parman, D. Salzman, A. Wadhwa, J. F. Winther, J. Rosenthal, S. J. Forman, D. J. Weisdorf, S. H. Armenian, M. Arora, and S. Bhatia. 2018. Assessment of late mortality risk after allogeneic blood or marrow transplantation performed in childhood. JAMA Oncology 4(12):e182453. https://doi.org/10.1001/jamaoncol.2018.2453.

Inamoto, Y., and S. J. Lee. 2017. Late effects of blood and marrow transplantation. Haematologica 102(4):614-625. https://doi.org/10.3324/haematol.2016.150250.

Jagasia, M. H., H. T. Greinix, M. Arora, K. M. Williams, D. Wolff, E. W. Cowen, J. Palmer, D. Weisdorf, N. S. Treister, G. S. Cheng, H. Kerr, P. Stratton, R. F. Duarte, G. B. McDonald, Y. Inamoto, A. Vigorito, S. Arai, M. B. Datiles, D. Jacobsohn, T. Heller, C. L. Kitko, S. A. Mitchell, P. J. Martin, H. Shulman, R. S. Wu, C. S. Cutler, G. B. Vogelsang, S. J. Lee, S. Z. Pavletic, and M. E. Flowers. 2015. National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: I. The 2014 Diagnosis and Staging Working Group report. Biology of Blood and Marrow Transplantation 21(3):389-401.

Jim, H. S. L., S. K. Sutton, B. J. Small, P. B. Jacobsen, W. A. Wood, J. M. Knight, N. S. Majhail, K. L. Syrjala, and S. J. Lee. 2016. Trajectories of quality of life after hematopoietic cell transplantation: Secondary analysis of Blood and Marrow Transplant Clinical Trials Network 0902 data. Biology of Blood and Marrow Transplantation 22(11):2077-2083. https://doi.org/10.1016/j.bbmt.2016.08.012.

Kanter, J., M. C. Walters, L. Krishnamurti, M. Y. Mapara, J. L. Kwiatkowski, S. RifkinZenenberg, B. Aygun, K. A. Kasow, F. J. Pierciey Jr., M. Bonner, A. Miller, X. Zhang, J. Lynch, D. Kim, J.-A. Ribeil, M. Asmal, S. Goyal, A. A. Thompson, and J. F. Tisdale. 2022. Biologic and clinical efficacy of LentiGlobin for sickle cell disease. New England Journal of Medicine 386:617-628. https://doi.org/10.1056/NEJMoa2117175

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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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King, A. A., R. C. McKinstry, J. Wu, M. Eapen, R. Abel, T. Varughese, N. Kamani, and S. Shenoy. 2019. Functional and radiologic assessment of the brain after reduced-intensity unrelated donor transplantation for severe sickle cell disease: Blood and Marrow Transplant Clinical Trials Network Study 0601. Biology of Blood and Marrow Transplantation 25(5):e174-e178. https://doi.org/10.1016/j.bbmt.2019.01.008.

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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Page 70
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Page 71
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 72
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 73
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 74
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 75
Suggested Citation:"Appendix A: References." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Page 76
Next: Appendix B: Workshop Agenda »
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The Board on Health Care Services of the National Academies of Sciences, Engineering and Medicine hosted a virtual workshop, funded by the Social Security Association, to examine disability associated with hematopoietic stem cell transplantation. The workshop, held on November 15, 2021, included presentations on the functional outcomes for individuals who have received hematopoietic stem cell treatment, as well as medical advances, developments, and research in this area. This Proceedings of a Workshop highlights the presentations and discussions that occurred in the workshop.

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