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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Appendix B

Workshop Agenda

MONDAY, NOVEMBER 15, 2021
EASTERN TIME ZONE

10:00 am Welcome and Workshop Overview
SARA ROSENBAUM, George Washington University Workshop Planning Committee Chair
Sponsor Remarks from the Social Security Administration
VINCENT NIBALI, Policy Analyst, Office of Medical Policy, Office of Disability Policy, Social Security Administration
STEVE ROLLINS, Deputy Associate Commissioner Office of Disability Policy, Social Security Administration
10:20 am Session 1—Hematopoietic Stem Cell Treatment and Disability in the United States
Moderator:
FRED APPELBAUM, Fred Hutchinson Cancer Research Center
Understanding Hematopoietic Stem Cell Treatment: Variations, Indications, and Survival
MARY HOROWITZ, Center for International Blood and Marrow Transplant Research (CIBMTR)
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
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Patterns of Recovery in Patients Treated with Hematopoietic Stem Cells
STEPHANIE LEE, Fred Hutchinson Cancer Research Center; University of Washington
Panel Discussion
11:25 am Session 2—Late Effects of Hematopoietic Stem Cell Treatment
Moderator:
DOUG RIZZO, Medical College of Wisconsin; CIBMTR
Immune Recovery in Patients After Hematopoietic Stem Cell Treatment
MIGUEL-ANGEL PERALES, Memorial Sloan Kettering Cancer Center
Graft vs. Host Disease: A Major Complication After Hematopoietic Stem Cell Treatment
BETTY K. HAMILTON, Blood and Marrow Transplant Program, Cleveland Clinic Taussig Cancer Institute
Considerations in Children and Adolescents Receiving Hematopoietic Stem Cell Treatment and the Transitions into Adulthood
STELLA DAVIES, Cincinnati Children’s Hospital Medical Center
Panel Discussion
12:45 pm Lunch Break
1:30 pm Session 3—Hematopoietic Stem Cell Treatment Survivorship
Moderator:
MARGARET BEVANS, National Institutes of Health (NIH)
Assessing Functional Outcomes in Patients Treated with Hematopoietic Stem Cells
KAREN SYRJALA, Fred Hutchinson Cancer Research Center
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Best Practices and Interventions in Hematopoietic Stem Cell Treatment Survivorship
AREEJ EL-JAWAHRI, Massachusetts General Hospital
STACI D. ARNOLD, Emory University; Children’s Healthcare of Atlanta
Patient and Caregiver Experiences
SUZANNE MCCARROLL, patient
MARGARET JUROCKO, caregiver
Panel Discussion
3:10 pm Break
3:20 pm Session 4—The Future Outlook for Stem Cell Treatment and Disability
Moderator:
ALEXIS THOMPSON, Northwestern University; Ann & Robert H. Lurie Children’s Hospital of Chicago
Gene Therapy
JOHN TISDALE, National Heart, Lung, and Blood Institute, NIH
CAR-T Cell Therapy
DAVID PORTER, University of Pennsylvania
Preventing/Mitigating Hematopoietic Stem Cell Treatment Complications
STEVEN DEVINE, National Marrow Donor Program; CIBMTR
Panel Discussion
4:25 pm Concluding Remarks
SARA ROSENBAUM, George Washington University Workshop Planning Committee Chair
4:30 pm Adjourn
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×

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Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 77
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 78
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 79
Suggested Citation:"Appendix B: Workshop Agenda." National Academies of Sciences, Engineering, and Medicine. 2022. Exploring the State of the Science of Stem Cell Transplantation and Posttransplant Disability: Proceedings of a Workshop. Washington, DC: The National Academies Press. doi: 10.17226/26541.
×
Page 80
Next: Appendix C: Biographical Sketches of Workshop Planning Committee Members and Speakers »
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The Board on Health Care Services of the National Academies of Sciences, Engineering and Medicine hosted a virtual workshop, funded by the Social Security Association, to examine disability associated with hematopoietic stem cell transplantation. The workshop, held on November 15, 2021, included presentations on the functional outcomes for individuals who have received hematopoietic stem cell treatment, as well as medical advances, developments, and research in this area. This Proceedings of a Workshop highlights the presentations and discussions that occurred in the workshop.

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