Appendix B
Workshop Agenda
MONDAY, NOVEMBER 15, 2021
EASTERN TIME ZONE
10:00 am | Welcome and Workshop Overview SARA ROSENBAUM, George Washington University Workshop Planning Committee Chair |
Sponsor Remarks from the Social Security Administration VINCENT NIBALI, Policy Analyst, Office of Medical Policy, Office of Disability Policy, Social Security Administration STEVE ROLLINS, Deputy Associate Commissioner Office of Disability Policy, Social Security Administration |
|
10:20 am | Session 1—Hematopoietic Stem Cell Treatment and Disability in the United States |
Moderator: FRED APPELBAUM, Fred Hutchinson Cancer Research Center |
|
Understanding Hematopoietic Stem Cell Treatment: Variations, Indications, and Survival MARY HOROWITZ, Center for International Blood and Marrow Transplant Research (CIBMTR) |
Patterns of Recovery in Patients Treated with Hematopoietic Stem Cells STEPHANIE LEE, Fred Hutchinson Cancer Research Center; University of Washington |
|
Panel Discussion | |
11:25 am | Session 2—Late Effects of Hematopoietic Stem Cell Treatment |
Moderator: DOUG RIZZO, Medical College of Wisconsin; CIBMTR |
|
Immune Recovery in Patients After Hematopoietic Stem Cell Treatment MIGUEL-ANGEL PERALES, Memorial Sloan Kettering Cancer Center |
|
Graft vs. Host Disease: A Major Complication After Hematopoietic Stem Cell Treatment BETTY K. HAMILTON, Blood and Marrow Transplant Program, Cleveland Clinic Taussig Cancer Institute |
|
Considerations in Children and Adolescents Receiving Hematopoietic Stem Cell Treatment and the Transitions into Adulthood STELLA DAVIES, Cincinnati Children’s Hospital Medical Center |
|
Panel Discussion | |
12:45 pm | Lunch Break |
1:30 pm | Session 3—Hematopoietic Stem Cell Treatment Survivorship |
Moderator: MARGARET BEVANS, National Institutes of Health (NIH) |
|
Assessing Functional Outcomes in Patients Treated with Hematopoietic Stem Cells KAREN SYRJALA, Fred Hutchinson Cancer Research Center |
Best Practices and Interventions in Hematopoietic Stem Cell Treatment Survivorship AREEJ EL-JAWAHRI, Massachusetts General Hospital STACI D. ARNOLD, Emory University; Children’s Healthcare of Atlanta |
|
Patient and Caregiver Experiences SUZANNE MCCARROLL, patient MARGARET JUROCKO, caregiver |
|
Panel Discussion | |
3:10 pm | Break |
3:20 pm | Session 4—The Future Outlook for Stem Cell Treatment and Disability |
Moderator: ALEXIS THOMPSON, Northwestern University; Ann & Robert H. Lurie Children’s Hospital of Chicago |
|
Gene Therapy JOHN TISDALE, National Heart, Lung, and Blood Institute, NIH |
|
CAR-T Cell Therapy DAVID PORTER, University of Pennsylvania |
|
Preventing/Mitigating Hematopoietic Stem Cell Treatment Complications STEVEN DEVINE, National Marrow Donor Program; CIBMTR |
|
Panel Discussion | |
4:25 pm | Concluding Remarks SARA ROSENBAUM, George Washington University Workshop Planning Committee Chair |
4:30 pm | Adjourn |
This page intentionally left blank.