One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.
This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:
Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. https://doi.org/10.17226/9970.
|What Would an Ideal Cancer Data System Look Like?||11-17|
|How are Healthcare Systems Monitoring Quality Today?||18-36|
|The Data Infrastructure for Health Services Research||37-45|
|Status of the Cancer Care Data System||46-75|
|Findings and Recommendations||76-94|
|Acronyms and Abbreviations||105-108|
|Appendix A: Ensuring Quality Cancer Care, Report Summary||109-122|
|Appendix B: Workshop Agenda and Participants||123-130|
|Appendix C: Summary of Selected Registry-Based Quality Studies||131-140|
|Appendix D: Information on Cancer Registries, by State||141-147|
|Appendix E: Reporting Requirements, NPCR, NCDB, SEER||148-154|
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