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One of the barriers to improving the quality of cancer care in the United States is the inadequacy of data systems. Out-of-date or incomplete information about the performance of doctors, hospitals, health plans, and public agencies makes it hard to gauge the quality of care. Augmenting today's data systems could start to fill the gap.

This report examines the strengths and weaknesses of current systems and makes recommendations for enhancing data systems to improve the quality of cancer care. The board's recommendations fall into three key areas:

  • Enhance key elements of the data system infrastructure (i.e., quality-of-care measures, cancer registries and databases, data collection technologies, and analytic capacity).
  • Expand support for analyses of quality of cancer care using existing data systems.
  • Monitor the effectiveness of data systems to promote quality improvement within health systems.

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Suggested Citation

Institute of Medicine and National Research Council. 2000. Enhancing Data Systems to Improve the Quality of Cancer Care. Washington, DC: The National Academies Press. https://doi.org/10.17226/9970.

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Publication Info

175 pages |  6 x 9 | 

ISBNs: 
  • Paperback:  978-0-309-08649-3
  • Ebook:  978-0-309-17153-3
DOI: https://doi.org/10.17226/9970
Chapters skim
Front Matter i-xii
Executive Summary 1-7
Introduction 8-10
What Would an Ideal Cancer Data System Look Like? 11-17
How are Healthcare Systems Monitoring Quality Today? 18-36
The Data Infrastructure for Health Services Research 37-45
Status of the Cancer Care Data System 46-75
Findings and Recommendations 76-94
References 95-104
Acronyms and Abbreviations 105-108
Appendix A: Ensuring Quality Cancer Care, Report Summary 109-122
Appendix B: Workshop Agenda and Participants 123-130
Appendix C: Summary of Selected Registry-Based Quality Studies 131-140
Appendix D: Information on Cancer Registries, by State 141-147
Appendix E: Reporting Requirements, NPCR, NCDB, SEER 148-154
Index 155-163

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