Appendix B

Committee and Speaker Biosketches

AMELIA BURKE-GARCIA is a seasoned health communications professional with nearly 20 years of experience in health communication program planning, implementation, and evaluation, with specific expertise in developing and evaluating digital health communications campaigns and intervention studies. Over the course of her career, Burke-Garcia has spearheaded innovative communication programs and studies on a variety of health topics. Examples include investigating perspectives and motivations of non-vaccinating online influencers, designing a targeted social media intervention with “mommy bloggers” to help social media users lower their risk for breast cancer, and leveraging MeetUp groups and the Waze mobile application to move people to action around flu vaccination and HIV testing, respectively. Most recently, she acted as director for the award-winning How Right Now/Que Hacer Ahora campaign, which is aimed at increasing people’s ability to cope and be resilient amidst the COVID-19 pandemic. She is also conducting three studies that examine perceptions and beliefs related to the COVID vaccine among hard-to-reach populations. She is the author of the book Influencing Health: A Comprehensive Guide to Working with Online Influencers and has been named to VeryWellHealth.com’s list of 10 Modern Female Innovators Shaking Up Health Care.

RACHEL CANAS is a senior research director in the Health Sciences Department at NORC at the University of Chicago. She currently serves as the assistant project director for the High School & Beyond (HS&B) Follow Up study, a longitudinal, multimode (web, Computer Assisted Telephone Interview, paper) study looking at the intersection of health, cognition,

and education. She also serves as a lead project manager for the Survey of Women multimode data collection, an address-based longitudinal study collecting sensitive health measures via web and mail surveys. Her primary expertise is with managing data collection efforts for large-scale, multimode studies. Her work spans questionnaire development, design of data collection technical systems, management of multimode data collection operations, and training of interviewers and locators. Prior to NORC, she managed multiple efforts related to questionnaire and instrument development across single-mode and multimode data collections at the University of Michigan Survey Research Operations. She has an M.S. in survey and data science from the University of Michigan.

STEPHANIE SOLOMON CARGILL is associate professor of health care ethics at Saint Louis University, with a focus on research ethics. Solomon Cargill’s empirical and theoretical research explores the ethical and policy issues that face research review boards like Institutional Review Boards (IRBs) and community advisory boards, as well as more specific issues around informed consent and research with vulnerable individuals and communities. She is the chair of Castle IRB, a private IRB that specializes in reviewing gene and cell therapy research, and she sits on Saint Louis University’s IRB. She develops and implements curricula in research ethics, public health ethics, and responsible conduct of research for graduate students, medical students, and researchers.

MICK P. COUPER (Steering Committee Member) is a research professor in the Survey Research Center Institute for Social Research at the University of Michigan. He has been doing surveys and research on surveys for over 30 years. He is the author of Designing Effective Web Surveys and co-author of The Science of Web Surveys, Nonresponse in Household Interview Surveys, and Survey Methodology. He has published widely on survey methodology in a variety of journals. His research focuses on the application of technology to the survey process, the design of computer-assisted surveys, and the data collection process, including issues of coverage, nonresponse, and measurement. He has also conducted research on consent to biomeasures and administrative record linkage. He holds a Ph.D. in sociology from Rhodes University, an M.A. in applied social research from the University of Michigan, and an M.Soc.Sc. from the University of Cape Town.

MICHAEL DAVERN (Steering Committee Chair) is senior vice president and director of the Public Health Research Department at NORC at the University of Chicago. His work focuses on survey research, public health data, linking surveys with administrative data, and Census Bureau data, as

well as the use of these data for policy research simulation and evaluation. Previously, at the University of Minnesota, he was an assistant professor of health policy and management, research director of the State Health Access Data Assistance Center, and co-director of the State Research Data Center. He also previously served as a statistician for the Labor Force and Transfer Programs Statistics Branch of the U.S. Census Bureau. A major focus of his work has involved applying state-level data to health policy issues and helping states monitor trends in health insurance coverage rates. He has an M.A. in sociology from Colorado State University and a Ph.D. in sociology from the University of Notre Dame.

BETTINA DRAKE is professor of surgery at Washington University School of Medicine in the Division of Public Health Sciences and associate director of community outreach and engagement at Siteman Cancer Center. Drake is a cancer epidemiologist and health disparities researcher with expertise in community-based research. Her research focuses on identifying preventive strategies to reduce disparities. The objectives of her research program are (1) to utilize community-based approaches to design, implement, and disseminate research information; (2) to promote education and awareness of research and research participation in minority communities; and (3) to identify the modifiable and nonmodifiable risk factors for cancer and other chronic diseases as well as the at-risk groups for these factors. The combination of her community-based and epidemiology expertise strengthens the effectiveness of her leadership for this component. She builds on the synergy between her community-engaged work and cancer epidemiology research to reduce health disparities and promote health equity.

CHRISTINE GRADY is a nurse-bioethicist, senior investigator, and chief of the Department of Bioethics at the National Institutes of Health Clinical Center. Her research focuses on clinical research ethics, including informed consent, vulnerability, study design, recruitment, international research ethics, and ethical issues faced by nurses and other health care providers. Grady has authored more than 200 papers in the biomedical and bioethics literature and authored or edited several books, including The Oxford Textbook of Clinical Research Ethics. She is an elected fellow of the Hastings Center and the American Academy of Nursing, a research fellow at Kennedy Institute of Ethics, and an elected member of the National Academy of Medicine. Grady holds a B.S. in nursing and biology from Georgetown University, M.S.N. in community health nursing from Boston College, and Ph.D. in philosophy from Georgetown University.

ERIC GRODSKY is professor of sociology and educational policy studies at the University of Wisconsin-Madison and co-principal investigator

of High School & Beyond (HS&B). In addition to his work with HS&B, Grodsky co-directs the Madison Education Partnership, a research-practice partnership between the Wisconsin Center for Education Research and the Madison Metropolitan School District, and leads several projects with Wisconsin’s state department of education. Grodsky has written on inequality in early childhood and higher education, educational gradients in morbidity and mortality, and social stratification over the life course more broadly. His work has appeared in the American Journal of Sociology, American Sociological Review, Social Forces, and Sociology of Education, among other venues.

PAMELA HERD is a professor in the McCourt School of Public Policy at Georgetown University and a principal investigator (PI) of the Wisconsin Longitudinal Study (2010-present). Her research focuses on health (especially biodemography), aging, stratification, and policy, with additional expertise in survey methods. She is a PI (with Sanjay Asthana) on a data collection project that is tracking dementia in the Wisconsin Longitudinal Study. She is also a member of the PI team for the General Social Survey. She is currently the NIH-appointed chair of the Data Monitoring Committee for the National Longitudinal Study of Adolescent to Adult Health (Add Health). Her research and data collection interests focus on relationships between social conditions and biological processes and outcomes, with particular interests in the relationships between social environments and biological outcomes. Her work has appeared in publications such as the American Sociological Review, Proceedings of the National Academy of Sciences, and Nature Genetics.

ROBERT A. HUMMER is the Howard W. Odum Distinguished Professor of Sociology and fellow of the Carolina Population Center at the University of North Carolina at Chapel Hill. Hummer is also currently serving as the president of the Population Association of America. His research program is focused on the accurate description and more complete understanding of population health patterns and trends in the United States. He is currently serving as director of the National Longitudinal Study of Adolescent to Adult Health (Add Health), which is funded by the National Institute on Aging and five co-funding institutes/offices. Over his career, he has published more than 150 journal articles and book chapters, with attention to health disparities both during infancy/childhood as well as across the adult life course. He is also co-author of Population Health in America.

ANNETTE JÄCKLE is professor for survey methodology at the Institute for Social Research (University of Essex, UK) and associate director for Innovations in Understanding Society. Current research projects focus on

methods for event-triggered data collection, collecting informed consents for data linkage, and using mobile apps for data collection.

EMILY LARGENT is the Emanuel and Robert Hart Assistant Professor of Medical Ethics and Health Policy at the University of Pennsylvania. She holds a secondary appointment at Penn Law. Her work explores ethical and regulatory aspects of human subjects research and the translation of research findings into care, with a particular focus on Alzheimer’s disease. In 2020, she was named a Greenwall Faculty Scholar; her faculty scholar project, “Autonomy on the Precipice of Cognitive Decline,” seeks to understand how the evolving understanding of Alzheimer’s disease affects patients and their families. She received her Ph.D. in health policy, with a concentration in ethics, from Harvard University and her J.D. from Harvard Law School. She was previously a fellow in the Department of Bioethics at the National Institutes of Health and clerked for Chief Judge Jeffrey Howard of the United States Court of Appeals for the First Circuit.

JENNIFER H. MADANS (Steering Committee Member) recently retired from the National Center for Health Statistics (NCHS), serving most recently as the center’s associate director for science, acting director, and acting deputy director. She was responsible for the overall plan and development of NCHS’s data collection and analysis programs. Her research has focused on efforts on data collection methodology and the measurement of health and functioning. She is a founding member and served as chair of the steering committees for three United Nations–sponsored initiatives to develop internationally comparable measures of disability and health, including the Washington Group on Disability Statistics, a city group under the auspices of the UN Statistical Commission making extensive contributions in all aspects of disability data collection internationally and in the United States. She is an elected fellow of the American Statistical Association, an elected member of the International Statistical Institute, and served as a vice president of the International Association of Official Statistics. She has a B.A. degree from Bard College and M.A. and Ph.D. degrees in sociology from the University of Michigan.

LISA MIREL is the chief of the Data Linkage Methodology and Analysis Branch in the Division of Analysis and Epidemiology at the National Center for Health Statistics (NCHS), Centers for Disease Control and Prevention. She directs the NCHS Data Linkage program, leading agency efforts to integrate NCHS data collection systems with external sources of health-related administrative data, to both expand the analytic potential of NCHS data and to develop innovative data resources that better inform public health policy and fill critical information gaps. She also oversees the development

and implementation of state-of-the-art data linkage methodologies and data quality assessment tools. Her work has focused primarily on integrating multiple sources of data through data linkage and advising on survey design and estimation techniques for large-scale national health surveys. She received her M.S. in biostatistics from the University of Michigan’s School of Public Health.

KATIE O’DOHERTY is a senior research director in the Health Sciences Department at NORC at the University of Chicago. Her expertise is in managing complex data collection projects that integrate biomeasure collection and cognitive assessments into survey research, including NIH projects such as the National Social Life, Health and Aging Project, the Abecedarian Project at Midlife, and High School and Beyond.

ANDY PEYTCHEV is a senior survey methodologist and fellow at RTI. He leads the design of large-scale surveys and principal investigator (PI)initiated research, and is the RTI PI for the National Survey of Family Growth. His research interests include study designs that minimize survey error with particular emphasis on nonresponse and measurement error. Peytchev’s recent work includes the evaluation of split questionnaire design, development of adaptive and responsive survey designs, implementation of multimode and multiphase data collection, augmentation of survey samples with other data, and synthetic data.

JOHN W. R. PHILLIPS serves as chief of the Population and Social Processes Branch of the Division of Behavioral and Social Research (BSR) in the National Institute on Aging (NIA). During a career spanning over 20 years, he has worked to produce research and data resources on aging-related topics. Prior to joining BSR, he was associate commissioner for research, evaluation, and statistics at the U.S. Social Security Administration (SSA). He previously served in other research roles in the federal government, including health scientist administrator for NIA, as well as research economist and director of the Office of Policy Research at SSA. His research has examined aging issues ranging from retirement security, intergenerational transfers, and distributional effects of retirement and disability programs. His current portfolio at NIA focuses on the economics of aging and the development of international comparators to the U.S. Health and Retirement Study to support aging research. He received a Ph.D. in economics from Syracuse University.

DEBRA REED-GILLETTE is currently director of the Survey Management and Analytics Group within the Office of Enterprise Data and Analytics of the Centers for Medicare & Medicaid Services. She has more than 30 years

of experience in federal health surveys with the Centers for Disease Control and Prevention, including the National Health Interview Survey and the National Health and Nutrition Examination Survey. Additionally, she served as a subject matter expert for the Oregon Health Study, the first New York City Health and Nutrition Examination Survey, the Canadian Health Measures Study, Survey of the Health of Wisconsin, and the National Children’s Study. Her expertise is in public health informatics focusing on public health-related data collection systems and data dissemination.

CAROL D. RYFF is director of the Institute on Aging and Hilldale Professor of Psychology at the University of Wisconsin-Madison. She studies how psychological well-being varies by age, gender, educational status, cultural context, and how it matters for diverse aspects of health including disease outcomes, length of life, physiological regulation, and neural circuitry. Her model of well-being is widely used around the world, with the assessment scales translated to more than 40 languages. Ryff is principal investigator of the MIDUS (Midlife in the U.S.) longitudinal study and its sister study in Japan, MIDJA (Midlife in Japan), for which she received an NIH Merit Award. Her scientific contributions (270+ publications) have been recognized with the Baltes Distinguished Research Award and the Mentoring Award from Division 20 of the American Psychological Association, Positive Health Award from the International Network of Positive Psychology, Murray Award from the Society of Personality and Social Psychology, Lifetime Achievement Award from the International Network for Personal Meaning, and Matilda White Riley Award from the National Institute on Aging.

SUNITA SAH (Steering Committee Member) is a physician turned professor and organizational psychologist at Cornell University and an honorary fellow at the University of Cambridge. She teaches leadership, negotiations, and critical thinking. Her research expertise is in conflicts of interest, disclosure, influence, consent, compliance, and trust. Sah is the director of academic leadership at Cornell University. She served as a commissioner on the National Commission of Forensic Science and on the Human Factors Committee for the National Institute of Science and Technology Forensic Science Standards Board. She is currently on the scientific advisory board of the Behavioral Economics in Health Network, an officer of the International Behavioural Public Policy Association, a fellow of the Society of Personality and Social Psychology, and on the editorial board of Behavioural Public Policy. She has won best paper and scholar awards from a number of U.S. and UK organizations. Prior to Cornell University, Sah was the KPMG Professor of Management Studies at the University of Cambridge, and earlier held academic positions at Georgetown, Duke, Russell Sage, and Harvard

Universities. Before entering academia, she worked as a medical doctor for the UK National Health Service. Sah holds a Ph.D. and M.S. in organizational behavior from Carnegie Mellon University, M.B.A. from London Business School, an M.B. Ch.B. in medicine and surgery and a B.Sc. (Hons) in psychology from the University of Edinburgh.

JOE SAKSHAUG is distinguished researcher at the German Institute for Employment Research, professor of statistics at the Ludwig Maximilian University of Munich, and honorary professor in the school of social sciences at the University of Mannheim. He also teaches in the International Program in Survey and Data Science. He is well known for his contributions to survey methodology, including the design, analysis, and quality of complex sample surveys, causes and corrections for nonresponse and measurement errors, and methods of combining multiple data sources.

TIMOTHY M. SMEEDING is the Lee Rainwater Distinguished Professor of Public Affairs and Economics at the La Follette School of Public Affairs at the University of Wisconsin-Madison. He was the founding director of the Luxembourg Income Study from 1983 to 2006 and was director of the Institute for Research on Poverty at UW Madison from 2008 to 2014. He is the 2017 John Kenneth Galbraith Fellow of the American Academy of Political and Social Science. Smeeding served on the board of directors of the National Academy on Aging and is an elected member of the National Academy of Social Insurance. He has served as head of the Economics of Aging Interest Group and is chair-elect of the Public Policy Committee for the Gerontology Society of America, where he was elected a fellow in 1990. Smeeding has written extensively on the topic of the economics of aging for numerous organizations and publications.

VETTA L. SANDERS THOMPSON (Steering Committee Member) is the E. Desmond Lee professor of racial and ethnic studies at the Brown School and associate dean for diversity, equity, and inclusion at Washington University in St. Louis. She also serves as co-director of the Center for Community Health Partnership and Research at the Institute for Public Health, is an associate member of the Siteman Cancer Center, a faculty affiliate of the Department of African and African-American Studies, and the Interdisciplinary Program in Urban Studies. She is a licensed psychologist and health service provider in the state of Missouri. Her research is focused on the health and well-being of ethnic and racial minorities, particularly the African American community. She is known for her work on racial identity, psychosocial implications of race and ethnicity in health behavior and determinants of health and mental health disparities. Sanders Thompson has conducted research on the promotion of cancer screening

among African Americans and community engagement, including a Patient-Centered Outcomes Research Institute funded project to develop a measure of the quality of community and patient engaged research. Over the years she has been honored by the St. Louis community and by professional colleagues for efforts to improve service delivery in Black communities. She received her B.A. in psychology and social relations from Harvard University, and M.A. and Ph.D. in psychology from Duke University, where she also completed clinical training.

BETH VIRNIG is the director of the Research Data Assistance Center at the University of Minnesota. She is a trained epidemiologist with expertise in population-based measures of health and health care use, particularly in the use of administrative data such as those from Medicare, Medicaid, and All Payer Claims Database. Her research has used Medicare data alone and in combination with other data sources, including cancer registry data, data from local and federal surveys, and compiled geographical summaries, and she has examined access to health care and use and outcomes of that care, and how health care is influenced by patients, providers, and markets. Her research on the elderly in the Medicare program focuses on cancer surveillance and care, Medicare managed care, and end-of-life care.

LINDA WAITE is the George Herbert Mead Distinguished Service Professor of Sociology at the University of Chicago and Senior Fellow at NORC at the University of Chicago. She is principal investigator of the National Social Life, Health and Aging Project (NSHAP), widely recognized as the gold standard for the collection of survey data on older adults’ intimate and social relationships and innovation in the development of methods for the collection of biomarkers such as blood spots and saliva during in-home interviews. As part of NSHAP’s multidisciplinary investigatory team, Waite has participated in three rounds of data collection, with a fourth under way, a COVID-19 substudy, and numerous ancillary studies. Using unique data from NSHAP’s partner dyads, Waite has expanded research and public discourse on later-life sexuality. Her widely published research demonstrates that sexuality is not just the province of the young. Waite has received numerous honors and awards for her scholarly contributions. Waite is also past president of the Population Association of America and was a member of the Advisory Board to the director of the National Institutes of Health (NIH). She has received a MERIT Award from NIH and is an elected member of the American Academy of Arts and Sciences.

NICOLE WATSON is a survey methodologist and associate professor at the Melbourne Institute within the University of Melbourne. She has

worked on the Household, Income and Labour Dynamics in Australia (HILDA) Survey since 2000. Her role has covered many aspects of the HILDA Survey Project, including fieldwork contract management, weighting, and imputation.

DAVID WEIR is a research professor in the Survey Research Center at the Institute for Social Research at the University of Michigan and director of the Health and Retirement Study (HRS). He has led the transformation of the HRS into a world-leading biosocial survey combining its traditional excellence as a longitudinal economic survey with direct biological measures of health, genetics, linked medical and long-term care records from the Medicare system, and enriched psychological measurement. His research increasingly includes comparative analyses from the international family of HRS studies that now cover more than half the world’s population, including the dementia assessments done with the Harmonized Cognitive Assessment Protocol developed by HRS for international comparisons. He received his Ph.D. in economics from Stanford University and previously held faculty positions at Yale and the University of Chicago.