Appendix A
Public Meeting Agenda
IMPROVING CONSENT AND RESPONSE IN LONGITUDINAL STUDIES OF AGING: A WORKSHOP1
September 27–28, 2021
| 12:00 | Welcome and Introduction |
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Brian Harris-Kojetin, CNSTAT |
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John Phillips, National Institute on Aging |
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Goals of the Workshop |
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Michael Davern, NORC at the University of Chicago, Planning Committee Chair |
BACKGROUND AND CONTEXT
| 12:15 | Opportunities and Challenges with Response and Consent in Longitudinal Surveys on Aging |
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Chair: Vetta L. Sanders Thompson, Washington University in St. Louis |
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1 Presenters’ slides and videos of the entire workshop are available at https://www.nationalacademies.org/event/09-27-2021/improving-consent-and-response-in-longitudinal-studiesof-aging-a-workshop.
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Participants: |
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Carol Ryff, University of Wisconsin |
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Linda Waite, University of Chicago |
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Bob Hummer, University of North Carolina, Chapel Hill |
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David Weir, University of Michigan |
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| 1:20 | Identifying and Reducing Selection Bias |
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Chair: Jennifer H. Madans, retired, National Center for Health Statistics |
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Participants: |
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Joe Sakshaug, University of Mannheim |
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Debra Reed Gillette, Centers for Medicare and Medicaid Services |
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Andy Peytchev, RTI International |
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| 2:15 | Break |
PARTICIPATION
| 2:30 | Maximizing Respondent Retention |
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Chair: Michael Davern, NORC at the University of Chicago |
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Participants: |
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Nicole Watson, University of Melbourne |
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Eric Grodsky, University of Wisconsin, and Rachel Canas, NORC at the University of Chicago |
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Pam Herd, Georgetown University |
DATA LINKAGE
| 3:30 | Challenges to Connecting Data across Agencies |
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Chair: Jennifer H. Madans, retired, National Center for Health Statistics |
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Participants: |
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Beth Virnig, University of Minnesota |
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Lisa Mirel, National Center for Health Statistics |
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| 4:30 | Day One Wrap-Up |
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Michael Davern, NORC at the University of Chicago |
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| 4:45 | Adjourn |
DAY 2
TUESDAY SEPTEMBER 28, 2021
| 12:00 | Intro and Recap of Day One |
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Michael Davern, NORC at the University of Chicago, Planning Committee Chair |
INFORMED CONSENT
| 12:10 | The Complexity of Informed Consent |
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Chair: Vetta L. Sanders Thompson, Washington University in St. Louis |
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Participants: |
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Annette Jäckle, University of Essex |
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Katie O’Doherty, NORC at the University of Chicago |
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Christine Grady, National Institutes of Health |
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| 1:05 | Ethical Considerations for Obtaining Informed Consent |
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Chair: Vetta L. Sanders Thompson, Washington University in St. Louis |
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Participants: |
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Stephanie Solomon Cargill, St. Louis University |
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Emily Largent, University of Pennsylvania |
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Sunita Sah, University of Cambridge and Cornell University |
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| 2:00 | Break |
PARTICIPATION
| 2:15 | Participant Engagement: Insights from Behavioral Science Research |
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Chair: Sunita Sah, University of Cambridge and Cornell University |
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Participants: |
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Bettina Drake, Washington University School of Medicine in St. Louis |
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Amelia Burke-Garcia, NORC at the University of Chicago |
INNOVATION
| 3:15 | Looking Ahead: Applying Innovative Strategies to Improve Consent and Response |
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Chair: Michael Davern, NORC at the University of Chicago |
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Participants: |
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Annette Jäckle, University of Essex |
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Timothy Smeeding, University of Wisconsin |
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Andy Peytchev, RTI International |
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| 4:15 | Wrap-Up Discussion |
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Chair: Brian Harris-Kojetin, CNSTAT |
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Participants: |
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John Phillips, National Institute on Aging |
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Michael Davern, NORC at the University of Chicago |
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Jennifer H. Madans, retired, National Center for Health Statistics |
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Sunita Sah, University of Cambridge and Cornell University |
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Vetta L. Sanders Thompson, Washington University in St. Louis |
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| 5:00 | Adjourn |
