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Guidance on PFAS Exposure, Testing, and Clinical Follow-Up (2022)

Chapter:Appendix C: Public Meeting Agendas

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Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×

Appendix C

Public Meeting Agendas

COMMITTEE ON THE GUIDANCE ON PFAS TESTING AND HEALTH OUTCOMES

The Keck Center, 500 Fifth Street, NW
Washington, DC 20001

FEBRUARY 4, 2021

VIRTUAL MEETING

1:00 Purpose of Open Session and Introduction of Committee Members
Bruce N. Calonge, Committee Chair
1:15–2:00 ATSDR Perspectives on Study Scope, Background, and Objectives
Patrick Breysse, Director, National Center for Environmental Health/Agency for Toxic Substances and Disease Registry
2:00–2:45 NIEHS Perspectives on Study Scope, Background, and Objectives
Brian R. Berridge, Scientific Director, Division of the National Toxicology Program, Associate Director, National Toxicology Program
2:45–3:35 Committee Discusses the Statement of Task with the Sponsor
3:35–3:40 Break
3:40–3:45 Instructions for Public Comment Session
Bruce N. Calonge
3:45–4:45 Opportunity for Public Comment on Committee’s Charge (must preregister, 1 person per organization, 3 minutes each)
4:45 ADJOURN

APRIL 7, 2021
EASTERN COMMUNITIES TOWN HALL (ATSDR REGIONS I–IV)
VIRTUAL MEETING

2:00–2:10 Welcome and Introductions Bruce N. Calonge, Committee Chair

SESSION A—Community Perspectives from ATSDR Region I

2:10–3:10 Community Perspectives from ATSDR Region I
Alan Woolf, Moderator, Harvard Medical School/Boston Children’s Hospital
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
2:10–2:20 Laurene Allen, Merrimack Citizens for Clean Water
2:20–2:30 Teresa Gerade, Don’t Undermine Memphremagog’s Purity (DUMP)
2:30–2:40 Ayesha Khan, Nantucket PFAS Action Group
2:40–2:50 Kristen Mello, Westfield Residents Advocating For Themselves (WRAFT)
2:50–3:10 Discussion

SESSION B—Community Perspectives from ATSDR Region II

3:10–3:45 Community Perspectives from ATSDR Region II
Laurel Schaider, Moderator, Silent Spring Institute
3:10–3:20 Tracy Carluccio, Delaware Riverkeeper Network
3:20–3:30 Loreen Hackett, PFOA Project New York
3:30–3:45 Panel Discussion
3:45–3:55 Break

SESSION C—Community Perspectives from ATSDR Region III

3:55–4:30 Community Perspectives from ATSDR Region III
Maida Galvez, Moderator, Icahn School of Medicine at Mount Sinai
3:55–4:05 Patrick Elder, Military Poisons
4:05–4:15 Hope Grosse, Buxmont Coalition for Safe Water
4:15–4:30 Panel Discussion

SESSION D—Community Perspectives from ATSDR Region IV

4:30–5:40 Community Perspectives from ATSDR Region IV
Linda Birnbaum, Moderator, National Institute of Environmental Health Sciences, National Toxicology Program (retired)
4:30–4:40 La’Meshia Whittington, North Carolina Black Alliance
4:40–4:50 Mike Watters, Grays Creek Residents United Against PFAS in our Wells & Rivers
4:50–5:00 Emily Donovan, Clean Cape Fear
5:00–5:10 Cheryl Sievers-Cail, South Carolina Indian Affairs Commission/SC Idle No More
5:10–5:20 Stel Bailey, Fight For Zero
5:20–5:45 Panel Discussion
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
5:40–5:45 Break

SESSION F—OPEN COMMENT PERIOD

5:45–6:45 Public Comments
6:45 ADJOURN

MAY 6, 2021
MIDDLE COMMUNITIES TOWN HALL (ATSDR REGIONS V–VII)
VIRTUAL MEETING

3:00–3:10 Welcome and Introductions
Bruce N. Calonge, Committee Chair

SESSION A—Community Perspectives from ATSDR Region V

3:10–3:55 Community Perspectives from ATSDR Region V
Phil Brown, Moderator, Northeastern University
Andi Rich, Save Our Water (S.O.H20)
Laura Olah, Citizens for Safe Water Around Badger (CSWAB)
Samraa Luqman, Concerned Residents for South Dearborn
Cathy Wusterbarth, Need Our Water (NOW)
3:55–4:15 Panel Discussion with Session B Speakers

SESSION B—Community Perspectives from ATSDR Region V (continued)

4:15–4:50 Community Perspectives from ATSDR Region V
Courtney Carignan, Moderator, Michigan State University
Sandy Wynn-Stelt, Belmont, Michigan, resident
Tom Johnson, Clean Water Action
Vicki Quint, Foam Exposure Committee/Code PFAS
4:50–5:10 Panel Discussion
5:10–5:20 Break

SESSION C—Community Perspectives from ATSDR Region VI and VII

5:20–5:55 Community Perspectives from ATSDR Regions VI and VII
Alan Ducatman, Moderator, West Virginia University
Art Schaap, Highland Dairy, Cedar Rapids, Iowa Resident
John Kern, Clean Water Partnership
5:55–6:15 Panel Discussion
6:15–6:20 Break
6:20–7:00 Public Comments
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
7:00 ADJOURN

MAY 25, 2021
WESTERN COMMUNITIES TOWN HALL (ATSDR REGIONS VIII–X)
VIRTUAL MEETING

1:00–1:10 Welcome and Introductions
Bruce N. Calonge, Committee Chair

SESSION A—Community Perspectives from ATSDR Region VIII and IX

1:10–2:00 Community Perspectives from ATSDR Region VIII and IX
Elizabeth Neary, Moderator, Wisconsin Environmental Health Network
Liz Rosenbaum, Fountain Valley Clean Water Coalition
Martha Dina Argüello, Physicians for Social Responsibility, Los Angeles
Mark A. Favors, Army Veteran
1:40–2:00 Panel Discussion

SESSION B—Community Perspectives from ATSDR Region IX

2:00–2:30 Community Perspectives from ATSDR Region IX
Lenny Siegel, Moderator, Center for Public Environmental Oversight
Andria Ventura, Clean Water Action Fund
Linda Shosie, Environmental Justice Task Force, Tucson, Arizona
Aaron Maruzzo, University of California, Berkeley, School of Public Health
2:30–2:50 Panel Discussion
2:50–3:00 Break

SESSION C—Community Perspectives from ATSDR Region X

3:00–3:30 Community Perspectives from ATSDR Region X
Anna Reade, Moderator, Natural Resources Defense Council
Pamela Miller, Alaska Community Action on Toxics
Randy Krause, Port of Seattle/Washington State Association of Fire Chiefs
Jean Mendoza, Friends of Toppenish Creek
3:30–3:50 Panel Discussion

SESSION D—Additional Community Perspectives

3:50–4:20 Additional Community Perspectives
Celeste Anne Monforton, Moderator, Texas State University
Rebecca Patterson, Vietnam Veterans of America
Bucky Bailey, Son of former DuPont Washington Works plant employee
4:20–4:40 Panel Discussion with Session E Speakers
4:40–4:45 Break
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
4:45–5:00 Public Comments
5:00 ADJOURN

JULY 13–14, 2021
INFORMATION-GATHERING SESSION, MEETING 5
VIRTUAL MEETING
Thursday, July 13, 2021

1:30–1:40 Welcome and Introductions
Bruce N. Calonge, Committee Chair

SESSION A—Patient Perspectives on PFAS Testing and Health Outcomes

1:40–1:55 Patient Perspectives on PFAS Testing and Health Outcomes
Andrea Amico, Testing for Pease

SESSION B—Human Exposure Sources

1:55–2:25 Current Knowledge About the Contribution of PFAS Exposure Sources to Human Exposure
Elsie M. Sunderland, Harvard University
2:25–2:55 Panel Reflection and Q&A from Committee
Chris Wiant, Moderator, Committee Member
Bruce H. Alexander, Colorado State University
Thomas F. Webster, Boston University School of Public Health
Laurel Schaider, Silent Spring Institute
Elsie M. Sunderland, Harvard University
2:55–3:05 Break

SESSION C—Human Exposure Reduction

3:05–3:35 Clinical Principles for Advising Patients to Reduce Exposure
Sheela Sathyanarayana, University of Washington
3:35–4:05 Panel Reflection and Q&A from Committee
Brian Linde, Moderator, Committee Member
Judy LaKind, LaKind Associates
Andrea Amico, Testing for Pease
Sheela Sathyanarayana, University of Washington
4:05–4:35 Open Comment Period
4:35 ADJOURN
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×

HEALTH EFFECTS
Wednesday, July 14, 2021

1:00–1:10 Welcome, Purpose of Open Session
Bruce N. Calonge, Committee Chair

SESSION D—Overview of Putative Health Effects

1:00–2:10 Epidemiology: David Savitz, Brown University
Toxicology: Jamie DeWitt, East Carolina University
2:10–2:40 Panel Reflection and Q&A from Committee
Jane Hoppin, Moderator, Committee Member
Linda Birnbaum, National Institute of Environmental Health Sciences, National Toxicology Program (retired)
Joseph M. Braun, Brown University
Matthew Longnecker, Ramboll
David Savitz, Brown University
Jamie Dewitt, East Carolina University
2:40–2:55 Break

SESSION E—Evidence Synthesis and Its Application

2:55–3:25 Methods for Evidence Synthesis
Jonathan Samet, Colorado School of Public Health
3:25–3:55 Making Useful Recommendations
Rebecca L. Morgan, McMaster University
3:55–4:25 Panel Reflection and Q&A from Committee
Bruce N. Calonge, Moderator, Committee Member
Ellen Chang, Exponent
Nicholas Chartres, University of California, San Francisco
Holger Schünemann, McMaster University
Rebecca L. Morgan, McMaster University
Jonathan Samet, Colorado School of Public Health
4:25–4:55 Open Comment Period
4:55 ADJOURN
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×

AUGUST 11–12, 2021
INFORMATION-GATHERING SESSION, MEETING 6
VIRTUAL MEETING
Wednesday, August 11, 2021

1:25–1:35 Welcome and Introductions
Bruce N. Calonge, Committee Chair

SESSION A—Frameworks for Making Decisions on Clinical Evaluation and Biomonitoring

1:35–2:05 Principles for Making Decisions on Clinical Evaluation and Biomonitoring
David Resnik, National Institute of Environmental Health Sciences
2:05–2:35 Application of Decision-Making Framework in the C-8 Medical Monitoring Panel
Dean Baker, University of California, Irvine
2:35–3:05 Panel Reflection and Q&A from Committee
Kevin Elliott, Moderator
Courtney Carignan, Michigan State University
Ayesha Khan, Nantucket PFAS Action Group
Jeffrey Brent, University of Colorado
Dean Baker, University of California, Irvine
David Resnik, National Institute of Environmental Health Sciences

SESSION B—Clinician Perspective on Advising Patients in PFAS-Exposed Communities

3:05–3:25 Clinician Perspective on Advising Patients in PFAS-Exposed Communities
Alan Ducatman, West Virginia University
3:25–3:55 Panel Discussion with Clinicians Who Have Advised Patients in PFAS-Exposed Communities
Laura Anderko, Moderator
Katie Huffling, Alliance of Nurses for Healthy Environments
Stewart Reed, University of California, Los Angeles
Maida Galvez, Icahn School of Medicine at Mount Sinai Hospital
Alan Ducatman, West Virginia University
3:55–4:25 Open Comment Period
4:25 ADJOURN

Thursday, August 12, 2021

1:00–1:10 Welcome, Purpose of Open Session
Bruce N. Calonge, Committee Chair
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×

SESSION C—Clinical Principles for Communicating Biomonitoring Results and Relationship with Clinical Care

1:10–1:40 Biomonitoring Results: Communication
Julia Brody, Silent Spring Institute
1:40–1:55 PFAS Clinical Guidance
Phil Brown, Northeastern University
1:55–2:25 Panel Reflection and Q&A from Committee
Erin Haynes, Moderator, Committee member
Marc A. Nascarella, Massachusetts Department of Public Health
Jessica Nelson, Minnesota Department of Health
Gary Ginsberg, New York Department of Health
Julia Brody, Silent Spring Institute
Phil Brown, Northeastern University
2:25–2:55 Open Comment Period
2:55 ADJOURN
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page215
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page216
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page217
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page218
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page219
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page220
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page221
Suggested Citation:"Appendix C: Public Meeting Agendas." National Academies of Sciences, Engineering, and Medicine. 2022. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up. Washington, DC: The National Academies Press. doi: 10.17226/26156.
×
Page222
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In thousands of communities across the United States, drinking water is contaminated with chemicals known as perfluoroalkyl and polyfluoroalkyl substances (PFAS). PFAS are used in a wide range of products, such as non-stick cookware, water and stain repellent fabrics, and fire-fighting foam, because they have properties that repel oil and water, reduce friction, and resist temperature changes. PFAS can leak into the environment where they are made, used, disposed of, or spilled. PFAS exposure has been linked to a number of adverse health effects including certain cancers, thyroid dysfunction, changes in cholesterol, and small reductions in birth weight.

This report recommends that the Centers for Disease Control and Prevention (CDC) update its clinical guidance to advise clinicians to offer PFAS blood testing to patients who are likely to have a history of elevated exposure, such as those with occupational exposures or those who live in areas known to be contaminated. If testing reveals PFAS levels associated with an increased risk of adverse effects, patients should receive regular screenings and monitoring for these and other health impacts. Guidance on PFAS Exposure, Testing, and Clinical Follow-Up recommends that the CDC, Agency for Toxic Substances and Disease Registry (ATSDR), and public health departments support clinicians by creating educational materials on PFAS exposure, potential health effects, the limitations of testing, and the benefits and harms of testing.

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